The Cardiomyopathy Association
The Cardiomyopathy Association is a UK-based charity fighting heart muscle disease through support, education and campaigning. We want every person affected by cardiomyopathy to get the best treatment, information, care and support.
The perception that cardiomyopathy is rare is wrong. At least 1 in 500 people have cardiomyopathy. Cardiomyopathy is a common cause of sudden cardiac arrest in under 35 year olds.
Cardiomyopathy is a disease of the heart muscle that affects people of all ages and is mostly inherited. It is not curable and can be serious, but when diagnosed and treated successfully, most of those affected go on to lead long and full lives.
Our services include a freephone confidential helpline (0800 018 1024, 8:30am – 4:30pm Mon to Fri) with specialist cardiomyopathy support nurses, a range of publications and a website full of useful information, online forums where those affected by cardiomyopathy can share experiences, information days around the country with leading medical cardiomyopathy experts, volunteer-led support groups and a network of affected people who provide one-to-one support to others.
Our specialist nurses help with a wide range of queries, from medical and lifestyle to latest research and genetic screening.
We provide training and information to the medical profession. Our medical advisors include world leading cardiologists from London’s Heart Hospital and Great Ormond Street Hospital.
We are here for those who have just been diagnosed with cardiomyopathy, those living with the condition and for families and friends who need support or advice.
As a UK charity that receives no government funding, we rely entirely on the generosity of our supporters to fund our vital services for individuals and families affected by cardiomyopathy.Together, we’re fighting heart muscle disease!