Hypothalamic Hamartoma Uncontrolled Gelastic Seizures-United Kingdom HHUGS-UK

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Charity details

Registered address
35 Chiltern Avenue,
Amersham,Buckinghamshire
HP6 5AE

Phone
0800 999 4847

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Charity number
1098698

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Hypothalamic Hamartoma Uncontrolled Gelastic Seizures - United Kingdom (HHUGS-UK) is a national charity which aims;

  • to provide support and information to people and families affected by hypothalamic hamartoma (HH). 
  • to promote awareness about the HH condition, its complexities and effective treatment among the public and health professionals. 
  • to actively support and promote the right of HH sufferers to recieve proper treatment, care, education and social acceptance.
  • to assist and encourage research into the causes, effects, treatment and management of hypothalmic hamartoma.

We exist to make a difference, to facilitate change and to promote proper understanding about hypothalamic hamartoma and its complexities.

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