Duchenne UK

Charity details

Registered address
11 Bedford Road,
W4 1JD


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Duchenne UK is a lean, ambitious and highly focused charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. The charity has been formed by the coming together of Joining Jack and Duchenne Children's Trust, the two biggest funders of research in the UK in the last three years. We are committed to continuing to drive momentum to deliver treatments to help this generation of those with DMD.

Please visit our website at www.duchenneuk.org.

Duchenne Muscular Dystrophy is a desperately cruel muscle wasting disease that mainly affects boys. It’s the most common fatal genetic disease to affect children. It is 100% fatal and boys die in their early 20s. There are no treatments and no cure. 

There are lots of ways up can help us. Make a donation on this page, create your own event, or visit the campaigns and events sections to find out about our latest events - and then please join us.

Join our World's Strongest Boys campaign:

To grow up living with the reality of Duchenne makes these boys anything but weak. At Duchenne UK, we believe it makes them incredibly strong.

They are The World’s Strongest Boys.

World's Strongest Boys

The World’s Strongest Boys campaign asks people to use their muscles to help boys losing theirs. You can do this by buying a range of fitness products – protein shakers and t-shirts – or by registering to take part in our World’s Strongest Boys sporting events.

Join us at an event:

We often have charity places available for fundraisers on the events we list. This year we have some great opportunities for:

London Marathon 2017 - 23rd April 2017

Skydive - (Available on many dates throughout the year)

Duchenne Dash - 9th-10th June 2017

Wigan 10k – 3rd September 2017

World's Strongest Boys Triathlon - 17th September 2017

The Oxford Half Marathon - 8th October 2017

Royal Parks Half Marathon - 8th October 2017


Every year we run the The Duchenne Dash, our own annual exciting and exhausting 24-hour cycle ride from London to Paris, which last year raised over £400,000.

Please contact events@duchenneuk.org if you are interested in taking a place in any of these events, or want to find out more.

Thank you everyone for your continued and much-needed support.

Support us

If you'd like to support Duchenne UK just click the links below: