Charlotte Freeston

Charity

The Daisy Garland
A family-run national children’s charity providing active support for children with drug-resistant epilepsy and their parents/carers. The charity was set up in memory of our daughter Daisy who tragically died at 6 years of age from SUDEP (sudden unexpected death in epilepsy patients). We provide NHS hospitals with ketogenic dietitians - a medically recognised and accepted way of treating drug resistant epilepsy. This diet is not widely available on the NHS due to lack of funding. We also provide grants for night-time breathing monitors to children with drug-resistant epilepsy.
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Hannah's Parachute Jump for Harry!

Fundraiser: 
Charlotte Freeston

My page: http://uk.virginmoneygiving.com/Hannahsjump

Hi, thank you for visiting Harrys page.... as many of you know Harry has epilepsy which seems to be hard to control, he is on three anti-epileptic drugs morning and night and still not fully under control...

Harrys auntie Hannah is going to be taking part in a parachute jump in July and is raising money for the Daisy Garland charity as they have helped Harry and his family.

The Daisy Garland charity kindly granted us with a SATs monitor this, which we are able to use when Harry is sleeping and alerts us, if he was to come into any difficulties whilst we are sleeping.  Harry's oxygen levels drop greatly whilst he is having a seizure so it is important that we are alerted to give him his rescue medication and call for the emergency services.

How Daisy Garland Help Familes

  • They provide grants for night-time breathing monitors (SATs/Epilepsy Monitors) for use in the home.
  • They provide various small one-off grants.
  • They supply Daisy Garland Ketogenic Handbooks to dieticians, schools, hospitals and parents/carers of children with epilepsy.
  • They provide support for parents through our charity phone-line, email, The Daisy Garland Facebook page and Twitter. 
  • They provide complimentary Daisy Garland Ketogenic Welcome Boxes for every new family starting the Ketogenic Diet.
  • They have funded fourteen Daisy Garland Ketogenic Dietitians who work within NHS hospitals throughout the UK, with more planned to follow.

 

You can sponsor Harry and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.

Recent donors

10.08.16 WELL DONE Hannah, such a good thing to do for such a great cause

18.07.16 Fantastic Hannah

17.07.16 Good luck!

16.07.16 Enjoy every second! Proud of you. Xx

11.07.16 You go girrrrrrl! X

11.07.16

11.07.16 Must be mad to jump out of a perfectly good aeroplane

11.07.16 Good luck, you are a very brave lady!!!

10.07.16 Good luck!!!! And see you on the ground! Lots of love, me, mum and dad and granny Lee xx

06.07.16 Hannah, you must be crazy BUT truly committed to a very worthy cause. Best Wishes James and the team @ James Slater (Surveyors) Limited

30.06.16 Best of luck Hannah!

22.06.16 Good luck

04.06.16 Well done Hannah! Good luck and Harry will give you a big slobbery smacker after! x

05.05.16 Go for it Han, you can do it xx

21.04.16 Good luck xx

20.04.16 Have a great time! Much braver than me!!! Xxx

20.04.16 Well done Hannah such a good cause xxx

£555.00

Running total

Target:
£500.00
Total raised incl. Gift Aid:
£610.00
Total donors:
17
Last donor:
Tim, from Next Door (No.15)
10.08.16  
Offline fundraising:
£150.00