James Harrison

Charity

The Daisy Garland
A family-run national children’s charity providing active support for children with drug-resistant epilepsy and their parents/carers. The charity was set up in memory of our daughter Daisy who tragically died at 6 years of age from SUDEP (sudden unexpected death in epilepsy patients). We provide NHS hospitals with ketogenic dietitians - a medically recognised and accepted way of treating drug resistant epilepsy. This diet is not widely available on the NHS due to lack of funding. We also provide grants for night-time breathing monitors to children with drug-resistant epilepsy.
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James Harrison's fundraising page

Fundraiser: 
James Harrison

My page: http://uk.virginmoneygiving.com/JamesToughmudder

Set up in 2004 The Daisy Garland is a family-run, national, UK registered charity. Our aim is to offer help and support, in whatever way we can, to those whose lives are touched by drug resistant epilepsy.

We fund an increasing number of Ketogenic Dietitians in NHS hospitals across the UK and provide help with support equipment for use at home.

Over the years we have helped hundreds of families with active support and advice. We hope that you too will find what you are looking for here on our website.

Normal brain function is made possible by millions of tiny electrical charges passing across nerve cells in the brain and to all parts of the body. In a seizure, this normal pattern may be interrupted by intermittent bursts of electrical energy that are much more intense than usual. These 'storms' affect the delicate systems responsible for the brain's electrical energy, and may affect a person's consciousness, awareness, movement and bodily posture for a short time. Normal brain function cannot return until the electrical bursts subside. In a nutshell, epilepsy is the tendency to have repeated seizures.

According to the Epilepsy Society, epilepsy affects at least 300,000 people in the UK - just over 60,000 of these people are children under the age of 16. Epilepsy affects 1 in every 100 children. It is the most common serious neurological condition in the world and can affect anyone at any time in their life - it has no respect for age, sex, race, or social class. Seizures tend to develop in childhood or by late adolescence, but the likelihood of developing epilepsy rises again after the age of 65. One in twenty people will have a single seizure at sometime in their life. You can develop epilepsy as a result of the brain being injured in some way, perhaps as a result of severe head injury, difficulties at birth or a serious infection which affects the brain, such as meningitis or encephalitis, a stroke or a tumour. Problems with a child's metabolism or faulty chromosomes can also result in epilepsy.

Epilepsy with a known cause is called symptomatic epilepsy, however, in the majority of cases, no cause can be found and this is called idiopathic epilepsy. Some children have what is known ascryptogenic epilepsy. This means that the doctors think there is probably a cause for the epilepsy, but they are unable to discover what it is.

 

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