Jenni Tomson

Charity

COSMIC
Every year the Paediatric Intensive Care Unit (PICU) at St Mary's Hospital in London treats 500 children who are seriously ill. COSMIC (Children of St Mary's Intensive Care), the charity which supports the Unit, relies totally on your donations to provide life-saving equipment and to fund vital research to ensure that the children in our care get the best treatment possible.


Please note Virgin Money Giving isn't responsible for the content fundraisers post on their pages, but if you see something you feel is offensive or inappropriate, please let us know and we'll look into it.

Jenni Tomson's fundraising page

Fundraiser: 
Jenni Tomson

My page: http://uk.virginmoneygiving.com/KDfundraising

Hello,

I am hosting a fundraising day to raise money for COSMIC (Children of St Marys Intensive Care) who are helping to raise money for research into a rare, but serious and potentially fatal childhood disease. This disease is called Kawasaki Disease and mainly affects children under 5 years old. Although very little is known about this disease, doctors do know that it causes the antibodies to attack the bodies’ organs by causing inflammation in the medium sized blood vessels. There is no single way to diagnose this disease, although several symptoms alongside blood results, echocardiograms and even ultrasounds of the abdomen can help towards giving a positive diagnosis. If Kawasaki Disease is not caught early and not treated quickly it can result in aneurysms of the heart, heart attacks, and even death.

The researchers will be looking into what causes this disease, to find a single way to be able to diagnose the disease, and also how it can cause problems for future life.

The reason I am hosting the fundraising day, is because my 4 year old son, Ryan, was diagnosed with Kawasaki disease in January 2016, and I saw first-hand the damage it can cause. Whilst in hospital he was having 3-4 tubes of blood taken daily to monitor his condition, he was on IV fluids, and even had to have a feeding tube inserted into his nose and through to his stomach to provide him with nutrients his body so desperately needed, as he was unable to eat or drink due to the effects of Kawasaki. He was given an ultrasound of his abdomen which showed his liver was inflamed, as was his kidneys and pancreas, and his gallbladder was distended. The most frightening thing they found during all the investigations was that he had a prominent artery of his heart, and a mild mitral regurgitation. We are currently awaiting a follow up echocardiogram to find out the severity of the damage to his heart.

Having seen my child go through something so traumatic and severe, and not being able to know why he got the illness, waiting for several days for a diagnosis, and seeing him go from a lively little boy to having absolutely no energy, being unable to eat, drink, sit up, and other simple tasks was heart breaking.

My aim is to raise as much money as possible through the fundraising event with activities such as a raffle and tombola, as well as guess the name of the teddy, and other fun activities, as I would like to be able to help researchers to understand more about Kawasaki disease, and hopefully prevent parents in the future from having to suffer the delays, the unanswered questions, and not knowing what caused such a terrible thing to happen to their child. All money raised will go to a research collaboration between the U.S. and the UK being led by Jane C Burns MD and Professor Michael Levin. Efforts to advance Kawasaki Disease research will now go twice as far thanks to the Gordon and Marilyn Macklin Foundation. The Macklin Foundation has given The Kawasaki research collaboration between Rady Children’s Hospital and Imperial College London an incredible opportunity to rapidly advance Kawasaki Disease research by matching gifts dollar for dollar up to $2.5 million!

Thanks

Jenni Tomson

Recent donors

25.04.16 Well done and good luck X

12.04.16 Well done Jen!

12.04.16 Well done Jen!

04.04.16 Tickets please

27.02.16

27.02.16 This research is a very much needed in order to help other children get a diagnose and treatment as soon as possible.

£75.00

Running total

Total raised incl. Gift Aid:
£80.00
Total donors:
6
Last donor:
Tracey Hargreaves
25.04.16  
Offline fundraising:
£0.00