Max Burr

Charity

The Daisy Garland
A family-run national children’s charity providing active support for children with drug-resistant epilepsy and their parents/carers. The charity was set up in memory of our daughter Daisy who tragically died at 6 years of age from SUDEP (sudden unexpected death in epilepsy patients). We provide NHS hospitals with ketogenic dietitians - a medically recognised and accepted way of treating drug resistant epilepsy. This diet is not widely available on the NHS due to lack of funding. We also provide grants for night-time breathing monitors to children with drug-resistant epilepsy.
Only 0 days to go!


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Max Burr's fundraising page for Daisy Garland

Fundraiser: 
Max Burr

My page: http://uk.virginmoneygiving.com/MaxBurr

Hi, thanks for visiting my page. Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.

Epilepsy doesn’t have the profile of other illnesses. However, for a child it can be incredibly debilitating and the courage, and resilience a child needs to manage it is inspiring. But one wishes they didn’t have to develop those skills so soon and so deep. And then…and then, there are their families, who, like any with a child who has an illness, are doing the travelling to various hospitals, dealing with the different consultants and finding the courage to bounce back when a certain treatment doesn’t work. That’s wear and tear on family life. Siblings must learn fast that there are times when the attention simply can’t be on them. Daisy Garland helps with all of this and it can be something as seemingly simple as an ‘alarm blanket’ that awakes a parent when a child might be about to, or having, a seizure. This can allow a parent some rest from trying to be alert 24/7.

My half marathon running, though frequent, is not glorious. My 11 year old son described my last effort as: ‘…just embarrassing..’ So…..I am training harder and better, but, as ever, completing is the key. Your support will make a massive difference to a number of families and will enable me to run (hopefully!) hard when I need to.

Recent donors

04.09.16 You can do it!

30.07.16 Good luck Max! Xx

21.07.16 Good Luck Mr Burr!

14.07.16 Good luck Max!!!

29.06.16 Great job Max! X

22.06.16 Good luck Max! What a great cause to run for.

22.06.16 Amazing challenge for an amazing charity. Good luck Max see you at the Finnish line.

22.06.16 Go Max! Great effort for a very worthwhile cause that is close to our hearts.

22.06.16 Good luck, your support for such a fantastic charity is wonderful!

20.06.16 Smash it buddy :)

£230.00

Running total

Total raised incl. Gift Aid:
£280.00
Total donors:
10
Last donor:
Maria
04.09.16  
Offline fundraising:
£0.00