Ian Evans

Charity

Moebius Research Trust
Moebius Syndrome is a rare congenital disorder which to date, has no cure, It affects primarily the 6th and 7th cranial nerves, which means that those with the condition are unable to move their faces, they cannot smile, frown, suck, grimace or blink their eyes. We are aiming to raise £250,000 to pay for research into what causes Moebius Syndrome and would be very grateful if you would help us reach our target.
Only 91 days to go!

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Ian Evans's fundraising page

Fundraiser: 
Ian Evans

My page: http://uk.virginmoneygiving.com/Oskarkilla

In 2017 I will be running the London marathon on behalf of my friends' son Oskar, who is an inspiration to all and a hero in every sense of the word...here is his story.

I'll write something now mate and you can crop bits and add your own etc. 
Óskar Louis Killa was born in Reykjavik, Iceland on May 21st 2015. 1 week after birth he was diagnosed with a syndrome called Moebius Syndrome. 
Moebius syndrome is a extremely rare syndrome and affects roughly every 1 in a million children.
The 6th and 7th cranial nerves are affected which unables the movement of the eyes and blinking, small tongue which causes problems eating, weakness of the neck, shoulder and arm muscles. 
The syndrome also affects Oskar's facial expressions. The ability to smile, laugh and to frown his eyebrows. Óskar was also born with abnormalities in his hands, Webbed fingers and some under developed fingers.
Having recently had his eye operation, Óskar is now waiting on 2 separate operations on his hands.

Óskar Louis Killa was born in Reykjavik, Iceland on May 21st 2015. 1 week after birth he was diagnosed with a syndrome called Moebius Syndrome. Moebius syndrome is an extremely rare syndrome and affects roughly every 1 in a million children.

The 6th and 7th cranial nerves are affected which unables the movement of the eyes and blinking, small tongue which causes problems eating, weakness of the neck, shoulder and arm muscles.

The syndrome also affects Oskar's facial expressions. The ability to smile, laugh and to frown his eyebrows. Óskar was also born with abnormalities in his hands, Webbed fingers and some under developed fingers.

Having recently had his eye operation, Óskar is now waiting on 2 separate operations on his hands.

Your donations can and will make a difference not only to Oskar but to all so please donate and make that difference happen.

For more information please visit their website via the following link http://www.moebiusresearchtrust.org/

Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this.

Recent donors

08.01.17 Good Luck Ian x

03.11.16 Boxing night money

29.10.16 Ticket sales

19.10.16 Payment for Welsh football auction winner - Scott's Timber Yard, Neath.

17.10.16 An absolute inspiration to us all.

17.10.16 X

12.10.16 Scarlets shirt winner

12.10.16 Round of golf for 4 - Won by Seamus

12.10.16 UFC Gunnar Nelson shirt - Won by Ricky Barton

12.10.16 For the signed ospreys jersey

12.10.16 Liam's uncle in Australia

12.10.16 Raffle prize money

10.10.16

08.10.16

08.10.16 Sorry we missed your evening we hope it went well.

08.10.16

08.10.16 Donated in loving memory of Bradley from Badleys Memorial Fund.....Clydach Cricket Club V Ynysmeudwy....remembering Brad and Kelly Kennedy both taken far too young xx

07.10.16 I hope this may help a little guys,all the best for the future little oscar

07.10.16 Good luck Ian and all the best to little Oskar x

06.10.16 Lots of love from Janine xxx

06.10.16 To Oskar, lots of love from Julie, Jayne, Jillian and the gang xxxxxxx

06.10.16 To Oskar, lots and lots of love from Uncle Cei and Auntie Brenda xxxxx

01.10.16 Good luck Ian and we'll done on yet more amazing fundraising for a great cause. Sorry this took me so long!

30.09.16 On behalf of everyone at Brynawel Afc! Good luck Evo mate!!!

21.09.16 Good Luck Ian

£4,750.00

Running total

Total raised incl. Gift Aid:
£4,883.75
Total donors:
42
Last donor:
Laura williams
08.01.17  
Offline fundraising:
£0.00
Donate now