Charity

Transplant Games and Recreational Fund
The TGRF charity enables us to take the Great Ormond Street Renal Transplant Patients to the Transplant Games each year, and provide them with tracksuits and t-shirts to compete in, and allows us to subsidise the cost for each family wishing to attend. The Transplant Games started back in 1978. Approximately 100 participants took part in the first Games in a one day event. Over the past 20 years, the British Transplant Games has grown to a four day annual event for over 500 competitors and nearly 1000 supporters. The British Transplant Games incorporates a wide variety of sporting and leisure activities for all age groups, so it is in effect their own mini Olympics, and is open to any child or adult that has had an organ transplant. The aim of The Games is to encourage transplant patients to regain fitness and to promote friendship and co-operation between individuals concerned with transplantation, whilst increasing public awareness of the value of organ donation. Some of the children and adults competing, go on to win medals, others come along to take part, renew friendships, do their sport at their own pace and generally enjoy a few days of fun and sharing amongst so many who had debilitating illnesses but who are now fit and well as a result of a successful transplant. The children and the parents all enjoy the chance to get together, as they can all share similar experiences that not many people have ever gone through. The TGRF charity not only enables us to help the families attend the British Transplant Games, but also other events such as skiing at the Winter Transplant Games, the sports hall event which is held in the spring and the World Transplant Games which is held every other year. Any money raised for the TGRF makes such a huge difference, as it is such a small charity. The team that manage the TGRF do so on a voluntary basis, so all of the money raised goes directly to the patients and their families.
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Dawn till Dusk Golf Marathon fundraising

Fundraisers: 
Phillip Gay

My page: http://uk.virginmoneygiving.com/team/PhillipGay1

CHARITY FUND RAISER

 On Friday 7th July 2017 myself & 3 like-minded friends will be playing golf from first light, around 5.00am until 8.00pm.  The event is kindly being hosted & supported by Woolston Manor Golf Club, Abridge Road, Chigwell, Essex IG7 6BX.  We will be playing golf non-stop for 15 hours to raise vital funds for the “Transplant Games and Recreational Fund” which supports the Great Ormond Street Hospital Renal Team as they have supported my daughter and our family following her recent kidney transplant.

You will see from the background story I have written below that the renal unit at GOSH have given our family unwavering support through a long and sometimes very difficult journey.  I was fortunate to be able to donate a kidney to my daughter to save her life.  Through this I would also like to raise awareness of “Living Donor Transplant” and prove that you can still live a full and active life after donating of a life-saving organ.

The Transplant and Recreational Fund provides a whole range of activities designed to offer transplant recipients, their families and living donor transplantee’s the help, support, education and opportunities to get back into sport to enable them to live a healthy and active life. 

The nurses who run the fund do so on a voluntary basis but in order to help as many people as possible they need to raise at least £40,000/annum. 

Upon completion of the golf marathon around 8.00pm, we will delighted to meet you for some drinks in the bar with a buffet & some light entertainment.  This will be followed by a charity auction of some fantastic days out & sports memorabilia along with a raffle with some other excellent prizes.  Absolutely all the money raised will go straight to the charity.

You can sponsor me for the golf marathon and you can pledge anything you wish, an amount per hole played, amount of shots taken etc.  I’ll will leave it to you to decide.  Whatever help you can give us will be gratefully received, as every penny raised will go to help someone in need.

 hrough Virgin Money Giving, you can sponsor me and 100% of donations will be passed to The Transplant Games and Recreational Fund.  Virgin Money Giving is a non-profit organisation and will automatically claim gift aid on the charity's behalf.  I really appreciate all your support and thank you for any donations.

 Please pop along if you are free, all are welcome.

 Much love health & happiness to you all

 Phillip Gay

 Charlotte’s Story:

It was in August 2011 that we returned from a family holiday with everyone happy and well.  Just a few days later our 11 year old daughter Charlotte became seriously ill lying on the sofa looking very swollen & unable to move for the pain. My wife and I rushed her to A & E where she was soon transferred to Great Ormond Street Hospital and diagnosed with primary FSGS Nephrotic Syndrome (a disease which affects your kidneys).  There then followed three years of attempting all different types of drugs and medications.  Charlotte’s kidney function was deteriorating so rapidly that they could no longer be saved.  t was then that the Doctors broke to us the reality of her condition, Charlotte had to have her kidneys removed and immediately start dialysis.

We then spent 5 weeks being trained by the wonderful GOSH Home Hemo renal team.  We were lucky to have the opportunity to have access to the NX stage Hemo Dialysis machine which my wife Denise and I learnt how to use in order for Charlotte to have her life saving dialysis at home.

Meanwhile we searched desperately for a kidney donor.  After testing over 20 people, family and friends it was decided that despite my being of an incompatible blood group the chances of a good outcome from a transplant was worth the risk as her health was deteriorating so rapidly.

Following 19 months of home dialysis, the transplant took place on the 17th February 2015.   Charlotte at GOSH with Denise her aunt & uncle and myself at Guys hospital with my brother & sister.

The next few months were full of ups & downs for us all, both physically & emotionally with many hospital visits, the worry of Kidney rejection & the possibility of the illness returning to attack her newly transplanted Kidney.

It was during one of these visits that Charlotte was given an information leaflet about a yearly, four day sporting and social event called The British Transplant Games which is attended by Great Ormond Street Hospital Renal Transplant Team.  This event was run by the nurses and volunteers who organised everything for all their families who wanted to participate.

Prior to her illness Charlotte was a keen sports person who was particularly interested in gymnastics and football in which she was selected for a county trial.    Unfortunately all this was put on stop by her illness and she understandably lost all interest in sport.  When the nurses first mentioned the transplant games Charlotte said that after being so ill she was not sure she could even participate in any form of sport.

After some coaxing from the nurses and ourselves she agreed to take part.   We explained that the games was an opportunity to make new friends with similar backgrounds that may well help her to grow in confidence.

The first games we attended were in Liverpool in 2016.  We were welcomed by the nurses and other families.   Amazingly to her delight, Charlotte won a gold medal in her badminton competition.

This whole event has completely changed Charlotte’s confidence levels and she continues to grow her badminton skills by joining a club & also beating her dad at weekly practice sessions in our local sports Centre.

That one gold medal sparked an interest in badminton that has kept her fit, well & active to this day.  It has also given her lots of fantastic opportunities including taking part in the World Transplant Games in Malaga this year.

We feel very fortunate that with everyone’s support from both GOSH, GUYS, family, friends, work colleagues and her schools, we have recovered to an almost normal family life (if such a thing exists ) in between hospital checkups etc.

Both Charlotte and I will continue to need the help and support of the Great Ormond Street Hospital renal unit for the rest of our lives.  They are all truly wonderful people who give up their free time to help others.

 

 

Recent donors

19.07.17 Thank you for all the support you have given the charity. Here is a little more...

17.07.17

14.07.17 Latest contributions duly attached

13.07.17

11.07.17 Thank you so much for all your support for our charity! Totally overwhelmed! Here's a little more!

11.07.17 What a truly worthy cause, massive congratulations on raising such an incredible amount. Very best wishes to everyone, from all at Harris.

11.07.17 A Massive Well Done to You All.

10.07.17 Inspirational

10.07.17 Big challenge, great cause Phil.

10.07.17 An amazing effort Phil and friends on the golf course and everyone else for their support in making it such a great evening and a mega successful fund raising event. Best of luck Charlotte in the games :) Simon and family

09.07.17

09.07.17

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09.07.17

09.07.17

09.07.17 well done keep up the good work

08.07.17 Brilliant cause, really enjoyed the event. Donation for the Bluebell auction.

08.07.17 Auction money

08.07.17 Hi Phil, attached is the money I have raised from my own sponsers for this event

08.07.17 Hi Phil, money for the four ball at Braintree attached

08.07.17

08.07.17

06.07.17

05.07.17 Hope you raise a fantastic amount for this amazing charity Have a great day

05.07.17 Sorry team Jackson could not attend. Good luck with the golf and fund raising evening

£15,865.00

Running total

Total raised incl. Gift Aid:
£18,942.50
Total donors:
121
Last donor:
Suzanne
19.07.17  
Offline fundraising:
£0.00