Charity

The Daisy Garland
A family-run national children’s charity providing active support for children with drug-resistant epilepsy and their parents/carers. The charity was set up in memory of our daughter Daisy who tragically died at 6 years of age from SUDEP (sudden unexpected death in epilepsy patients). We provide NHS hospitals with ketogenic dietitians - a medically recognised and accepted way of treating drug resistant epilepsy. This diet is not widely available on the NHS due to lack of funding. We also provide grants for night-time breathing monitors to children with drug-resistant epilepsy.
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The Venice Old Boys

Fundraisers: 
Todd Banbury

My page: http://uk.virginmoneygiving.com/team/Theveniceoldboys

route map

My friend Greg and I - the cyclinggranddads  - are cycling from Norwich to Venice from Wed 6 September 2017.  

We will be cycling for 18 days covering approximately 1030 miles over 9 countries.

We have chosen to raise money for a very worthy and special charity, The Daisy Garland, 'A journey of hope ....for children with epilepsy'. 

Over 1000 people die each year from SUDEP (Sudden unexpected death in epilepsy patients), most of these deaths happen in bed.

The Daisy Garland 'Reducing the Risk of SUDEP' programme, provides grants for night time breathing (SATs/epilepsy) monitors keeping children with epilepsy safe while they sleep. Each SATS Monitor retails at £880 and an epilepsy monitor costs £376.

In the past 10 years the Daisy Garland has also funded 15 Ketogenic Dieticians, all of them working within the NHS, successfully treating children with drug resistant epilepsy. Each full time Daisy Dietician costs £46k pa with a number of hospitals seeking support.So it would be fantastic if, with your help and mine,we are able to help fund and transform even more lives.


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Recent donors

12.10.17 Great effort, well done CGs.

02.10.17 Great stuff !!

30.09.17

28.09.17

28.09.17

28.09.17 Great achievement !

27.09.17 A fantastic achievement Todd. Well done to the ol' boys!!!

11.09.17 Good luck Todd & Greg. Well done for getting out there! Enjoy :)

08.09.17 Good luck hope it goes well

07.09.17 Good Luck to you both

05.09.17 Go go go !! Linda and Roy

04.09.17 Good luck Todd! Try to take in some of the beautiful countyside while you're cycling!

01.09.17 Todd - have a great trip hope you raise loads for The Daisy Garland charity best wishes David

31.08.17

30.08.17

29.08.17 Good luck. Debbie x

29.08.17 Take some spare pants and Arnica massage balm - Enjoy!

28.08.17 Good luck, Todd!

28.08.17

28.08.17

28.08.17

28.08.17 Good luck Todd

28.08.17

28.08.17 Felt you deserved more than a paltry 3p per mile - have upped it to 5p!! Kate Alderton

26.08.17

£734.20

Running total

Target:
£1,000.00
Total raised incl. Gift Aid:
£879.95
Total donors:
48
Last donor:

12.10.17  
Offline fundraising:
£0.00
Donate now