The Daisy Garland
A family-run national children’s charity providing active support for children with drug-resistant epilepsy and their parents/carers. The charity was set up in memory of our daughter Daisy who tragically died at 6 years of age from SUDEP (sudden unexpected death in epilepsy patients). We provide NHS hospitals with ketogenic dietitians - a medically recognised and accepted way of treating drug resistant epilepsy. This diet is not widely available on the NHS due to lack of funding. We also provide grants for night-time breathing monitors to children with drug-resistant epilepsy.
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The Venice old boys's fundraising page

Todd Banbury

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My friend Greg and I are cycling from Norwich to Venice in September 2017.

 We will be cycling for 18 days covering approximately 1000 miles.
 We have chosen to raise money for a very worthy and special charity, The Daisy Garland, 'A journey of hope ....for children with epilepsy'. 
Over 1000 people die each year from SUDEP (Sudden unexpected death in epilepsy patients), most of these deaths happen in bed.
 The Daisy Garland, 'Reducing the Risk of SUDEP' programme, provides grants for night time breathing (SATs/epilepsy monitors keeping children with epilepsy safe while they sleep. 
Each SATS Monitor retails at £880 and an epilepsy monitor costs £376.
In the past 10 years the Daisy Garland has also funded 15 Ketogenic Dieticians, all of them working within the NHS. Successfully treating children with drug resistant epilepsy. Each full time Daisy Dietician costs £46k pa with a number of hospitals seeking support.
So it would be fantastic if, with your help and mine,we are able to help fund and transform even more lives.
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18.06.17 Charlie Banbury



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