SOFT UK provides information & support for those affected by trisomy 13 or trisomy 18, (Patau's and Edwards' syndromes), and related disorders. We help parents when they are given a prenatal diagnosis and after any decision they might make as to whether they choose to have a termination or decide to continue the pregnancy. We support those caring for a baby or child with these conditions, and families if a bereavement occurs. SOFT UK publishes booklets about these syndromes, and provides telephone support, links to others and shared experiences through newsletters and annual SOFT Days. We welcome enquiries from doctors, nursing staff and students. Visit our website for online information booklets, data about these conditions, photographs of babies and children, and our new SOFT Stars Remembrance page.
Sands, the stillbirth and neonatal death charity
The death of a baby before, during or shortly after birth is a devastating experience with lifelong consequences for the whole family. Sadly, each year thousands of families face such heartache, with 15 babies dying every single day. Although the UK’s stillbirth rate has fallen slightly in recent years, it remains unacceptably high. We work to support bereaved families and improve the care they receive as well as fund vital research to prevent more families suffering the loss of their precious baby. To do this, we rely on your generosity and your help is greatly appreciated.

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Fundraising in memory of Amelia Rose

Jonathan Worth

My page:

At 36 weeks of pregnancy, our daughter, Amelia Rose, was diagnosed with a genetic disorder, Trisomy 18, also known as Edwards Syndrome. ( She was born asleep on 7th October, 2012, weighing 3lbs 5oz.

The charities SANDS and SOFT have both been incredibly helpful to us as we try to come to terms with this, and we would like to raise as much money as possible for them both.

Recent donors

07.12.12 In memory of Amelia Rose. Thinking of the 3 of you through these tough times.



26.10.12 Really sorry Jon, love to you & your family. Tiffany & Ben x

25.10.12 Thinking of you both.

25.10.12 For Claire, Jonathan, Oliver & Amelia, What a wonderful tribute to your beautiful angel. Love & thoughts continue to be with you. All our love, Leanne, Steve, Brad, Max & Maisie next door xXxXx

25.10.12 In loving memory of your Daughter Amelia Rose.

25.10.12 Jon & Claire So sorry for your loss. I can't begin to imagine how you feel. My thoughts are with you both.

24.10.12 So sorry to hear the news about little Amelia Rose. Everyone's thoughts are with you and your family.

22.10.12 Very sorry to hear the sad news of your baby Amelia Rose... Thinking of you and your family...

19.10.12 For my gorgeous little Amelia Rose xx

19.10.12 Claire and Jonathan, my thoughts are with you both. And also thinking of Amelia Rose, a little angel. xx

19.10.12 Thinking of you both. God bless. Love Beryl x

18.10.12 With love

18.10.12 For sweet Amelia with love and sympathy to Jonathan, Claire and Oliver

18.10.12 Our thoughts are with you all at this sad time xx

18.10.12 Our love and prayers are with you all at this very sad time. Amelia Rose is now with her guardian angel.

17.10.12 So sorry to hear about the loss of your beautiful baby Amelia Rose


17.10.12 Our thoughts are with you all

17.10.12 Thinking of you all, there are no words that can express how you must be feeling. Love to you all at this sad time xx

17.10.12 Thinking of all of you at this sad time. xx



17.10.12 our thoughts are with you all at this sad time xxx


Running total

Total raised incl. Gift Aid:
Total donors:
Last donor:
Barnaby Relf
Offline fundraising: