SOFT UK provides information & support for those affected by trisomy 13 or trisomy 18, (Patau's and Edwards' syndromes), and related disorders. We help parents when they are given a prenatal diagnosis and after any decision they might make as to whether they choose to have a termination or decide to continue the pregnancy. We support those caring for a baby or child with these conditions, and families if a bereavement occurs. SOFT UK publishes booklets about these syndromes, and provides telephone support, links to others and shared experiences through newsletters and annual SOFT Days. We welcome enquiries from doctors, nursing staff and students. Visit our website for online information booklets, data about these conditions, photographs of babies and children, and our new SOFT Stars Remembrance page.

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Ayla's Legacy's fundraising page

Fliss Reading, Fliss Reading

My page:

Our sincerest thank you.  By donating you have become a part of Ayla's Legacy.  Our aim is raise awareness of Edwards Syndrome (Trisomy 18). 1 in 3000-5000 babies will be diagnosed with Edwards.  SOFT UK provide support and information for these families as well as working closely with medical professionals to get more information and understanding across hospitals.  To know that our daughter's life, whilst only 3 days, has a positive impact on the world means so much to us. 

Recent donors

29.01.15 Thinking of you always gorgeous girl, especially at this time. All our love

15.12.14 Thinking of beautiful Ayla at Christmas, and always. With all our love xxx

23.06.14 We are sorry we couldn't be at Ayla's ball but we never stop thinking of our beautiful niece. All our love Tash, John and Olivia xxx

14.06.14 We love u your amazing for being so strong

12.06.14 Sorry we couldn't come to the ball. Looks like it went well.

11.06.14 Congratulations on all your efforts x

10.06.14 Well done. Such a great cause. Hopefully we will make your next fab event. Xx

09.06.14 From all who attended the Vintage Ball, in memory of Ayla Hope Reading. Our heartfelt thanks and love to you all x

11.05.14 Fliss you and Stew are an amazing team. Love to you all x Hope the event is a huge success


Running total

Total raised incl. Gift Aid:
Total donors:
Last donor:
Auntie Tash, Uncle John and Olivia xxx
Offline fundraising: