FOP Action
Working to raise awareness and help find a cure for Fibrodysplasia Ossificans Progressiva (FOP). FOP Action was founded to offer a forum for advice and support to all those affected by FOP, creating a place to find out about helpful aids and equipment and to exchange views and ideas. Since the discovery of the FOP gene in 2006, finding treatments and a cure are a distinct possibility but we need help to support research. FOP Action is a working name of FOP Friends of Oliver a charity registered in England and Wales 1147704.
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CURE FOR FOP MARATHON's fundraising page

sheryll hadley

My page:

Hi, thanks for visiting our page. Through Virgin Money Giving, you can sponsor us and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. We really appreciate all your support and thank you for any donations.

Hi everyone, Tom Pratt, (Lucy's brother) and his girlfriend Imi Taylor have very bravely offered to run The Edinburgh Marathon for FOP.

We urgently need to raise awareness and much needed research funds, in order to support our brilliant team of researchers at The Botnar Research Centre, University of Oxford.

Every penny counts, so if you are able, please sponsor us. For more information see WWW.FOPACTION.CO.UK

Very many thanks

Tom, Imi, Lucy, Sheryll and all families within the FOP Community Worldwide.

Recent donors

09.06.14 Well done Tom. Lots of love. Steve, Lisa and Sonny


30.05.14 A very kind and generous donation from Mrs.Sue Simpson, my Airbnb B and B owner, who I stayed with when in Edinburgh for the Marathon. Thanks so much Sue. Sheryll, Lucy, Tom and Imi and FOP Action UK

30.05.14 Excellent cause to donate too!

28.05.14 Good luck and for a great cause!

28.05.14 Nice one guys!

26.05.14 Well done!!

26.05.14 Well done today!

25.05.14 Well done Virgil

25.05.14 Well done!


25.05.14 Well done dudes!

25.05.14 Good Luck to Tom and Imi. Hope the weather is kind to all runners. Love Judi, Bob and Joanna x


24.05.14 Good luck Tom & Imi.

23.05.14 Good luck hope it goes well x



21.05.14 May the wind be behind you and the rain stay away for the day! Looking forward to seeing you come over the finish line. Thanks very much Tom and Imi. Not an easy task. With all our love and thanks Mum and Lucy and all families within the FOP Community

21.05.14 Best wishes from friends in Aberdeen

20.05.14 Good luck, porcupines!

20.05.14 good luck to you all

20.05.14 Good on youse two. Good luck

20.05.14 Good luck Tom - so worthwhile x

20.05.14 Run with your legs!


Running total

Total raised incl. Gift Aid:
Total donors:
Last donor:
lisa mason
Offline fundraising: