Charity

Ichthyosis Support Group.
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public. Ichthyosis is a rare genetic condition which predominantly affects the skin. It can affect as few as 1:300,000 people depending on the type of ichthyosis, of which there are many. It is a lifelong condition, usually presenting at birth and may be fatal. For many the daily bathing routine is rigid. Ichthyosis skin requires rigorous scrubbing to remove excessive growth and prevent infections that can cause death. Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking. If left to dry out it can cause contractures, which can even break bones in tiny fingers and toes and the sufferer endures excruciating pain.
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Ichthyosis - Daniels fundraising page

Fundraisers: 
Steve Maples, Emma Holby, Chris Holby, Tim Frankland, Andrew Holby, Megan Mynard

My page: http://uk.virginmoneygiving.com/team/DanielMaples

Hi, thanks for visiting our page.

The ISG Awareness Week 2014 is from 24th March-2nd April, and we would like everyone to join us for an ‘Ichthycyclotron’ on 29th March. The Ichthyosis Support Group (ISG) is 17 years old this year! We are calling out to you and urging you to get on YOUR BIKE and CYCLE for our good cause.

There will be a group of people cycling an approx. 50km (30 miles) to raise money and awareness for the ISG on the 29th and we would be grateful for any donations or others who would like to join us for the 2014 ICHTHYCYCLOTRON.

Recent donors

10.06.14

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10.06.14

10.06.14 Saw your story in the Metro paper. Good luck

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10.06.14 God bless you Daniel.

09.06.14 We have a boy a similar age, your fella looks so happy. Hope you raise lots and find a way to cure this condition.

09.06.14

09.06.14 For beautiful Daniel. x

09.06.14

09.06.14 To a beautiful brave little boy. Your truly inspirational

09.06.14 bless Daniel's little heart

09.06.14 Your little boy is really cute and happy looking, he's lucky to have positive support around him. Wishing you all happiness evermore.

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09.06.14 x

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09.06.14 This for Daniel, who is the most BEAUTIFUL boy! And for his parents, Emma and Steve. You are amazing, and I wish you much strength and much happiness.

09.06.14

09.06.14

12.05.14 From MM via JF

£3,225.00

Running total

Target:
£1,500.00
Total raised incl. Gift Aid:
£3,772.50
Total donors:
115
Biggest donor:
Ray Inskip
£585.00  
Last donor:
Anonymous
10.06.14  
Offline fundraising:
£730.00
Donate now