Clive Turvey

Charity

FOP Friends
FOP Friends is a charity set up to help those affected by FOP. Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles and other connective tissues such as tendons and ligaments turning otherwise healthy people into human statues. A healthy mind locked inside a frozen body. The condition is so rare (1 in 2,000,000) that little commercial interest exists in finding a cure so Oliver and his friends need your help. Please be a FOP Friend by supporting our charity.


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FOP Friends of Jamie's fundraising page

Fundraiser: 
Clive Turvey

My page: http://uk.virginmoneygiving.com/FOPFriendsOfJamie

Hello my name is Jamie and I am 7

I love watching The Jungle Book, Toy Story and Shrek. My favourite animal is chickens and I love watching them run about at the local farm, they make me laugh a lot. 

My favourite toy is Buzz Lightyear, he makes lots of great sounds!  Everyday I try to help my mummy and daddy and I especially like Hoovering as it makes lots of noise.

I have many naughty bones in my body which sometimes hurt a lot and makes me very sad however most of the time I have a big cheeky smile on my face.

Please give what you can to FOP and maybe one day the very clever team working at Oxford University will find a cure for me and my friends, so that we won't hurt anymore.

Thank you very much for visiting my page.


About Fibrodysplasia Ossificans Progressiva (FOP)

Fibrodysplasia Ossificans Progressiva (FOP) is an extremely rare and disabling genetic condition. It is where bone grows on muscle, tendons and tissues which can occur from the tiniest knock or trauma.  As the name suggests, it is progressive

There are approximately 700 diagnosed cases worldwide and there is no cure or medication to halt this condition at present. Because it is so very rare there are no government funds given for research, therefore it is really down to friends and families of the people affected to fundraise.
 
I would like to take this opportunity to thank you for visiting our fundraising page and for your continued support. We are closer to a cure than ever, even the smallest of donations making the biggest difference.


FOP Friends

FOP Friends is a charity registered in England and Wales #1147704.  Money raised supports finding a cure for FOP.

Recent donors

05.02.16

26.09.15

24.09.15

11.02.15

10.02.15

09.02.15

05.02.15

04.02.15 Well done Cali, Ian and everyone that worked so hard to raise money for such a wonderful cause. I hope that our donation will be of help to Jamie and his friends

03.02.15 With very best wishes on behalf of Alternative Enterprises Ltd.

02.02.15

02.02.15

02.02.15

31.01.15

30.01.15 With very best wishes ...

30.01.15 Sorry to miss the evening , sounds like it was a huge success!

30.01.15

30.01.15

30.01.15 Bless you Jamie on your challenging journey.

29.01.15

29.01.15 Lots of Love Jamie XXXX

29.01.15 hope tonight goes well

29.01.15

29.01.15

29.01.15 With best wishes from everyone at Gemmells.

29.01.15 Sorry I can't make it tonight Cali, but I hope it all goes well... really pleased you have raised so much already!

£4,202.00

Running total

Total raised incl. Gift Aid:
£4,781.25
Total donors:
89
Last donor:
Anonymous
05.02.16  
Offline fundraising:
£0.00
Donate now