Nicky Williams


FOP Friends
FOP Friends is a charity set up to help those affected by FOP. Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles and other connective tissues such as tendons and ligaments turning otherwise healthy people into human statues. A healthy mind locked inside a frozen body. The condition is so rare (1 in 2,000,000) that little commercial interest exists in finding a cure so Oliver and his friends need your help. Please be a FOP Friend by supporting our charity.

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Isla Williams's fundraising page

Nicky Williams

My page:

Hello and thank you for visiting Isla's page.

I am the proud mummy of Isla, at 3months old (March 2014) our beautiful princess was diagnosed with FOP (Fibrodsyplacia Ossificans Progressiva)

FOP is one of the rarest and most disabling genetic conditions known to medicine. FOP progressively forms a second skeleton that imprisons the body in bone. FOP turns otherwise healthy people like Isla into human statues; a healthy mind locked inside a frozen body.

Our world fell apart when we found out Isla had FOP but thankfully the UK charity, FOP Friends were there for us from the start and we soon learnt that a cure is looking hopeful within Isla's lifetime. The donations you make will be used to make this hope a reality.

Please help spread the word to raise these much needed funds.

Thank you so much,

Nicky xx

Recent donors

23.09.17 For a very little girl called Isla xx

22.09.17 Jeans for genes day for my favourite little girl!! Auntie Lou loves u loads!! Xxxxx

04.09.17 Jake and Amy's annual car boot proceeds for their very special friend Isla, much love xxx

10.07.17 Proceeds from the garden fundraiser held on 16th June. With thanks to all who contributed to raise funds for Isla and FOP friends.

14.06.17 Golf day donation

03.06.17 Kayaking for Isla IOW, special thanks to the Sun Inn at Calbourne and their crazy, adventurous customers!

06.05.17 My Granny used to always ask about Isla and would be delighted that the donations from her funeral are going to such a great cause

23.04.17 Lots of love Aunty Sarah and Aunty Chloe

30.03.17 FOP came up in coversation the other day, so i thought of Isla.

01.03.17 For the beautiful little Isla.

09.12.16 In honour of a very special little girl we are again donating to this very worthy cause instead of sending Christmas cards.

28.10.16 Late donation to the 'Gig for Isla 3' held on 1st Oct.

24.10.16 Well done on completing Great South Run.

22.10.16 Good luck with the run tomorrow


21.10.16 I'm doing the Great South Run on Sunday so here is my donation to start the ball rolling.

06.10.16 Well done with the Spartan Warriors, Janine!

02.10.16 Hopefully research will help to find a cure for FOP! Good luck to all fundraisers.

19.09.16 Jake and Amy's annual car boot selling toys and books for their fab friend Isla and her lovely FOP friends, with love xxx

12.09.16 We have only just heard of Isla's condition.


04.08.16 Hi Nicky, I am always following your posts...Isla looks like a beautiful little girl. I hope so much that a cure can be found soon and want to support the search. All the best for you and Isla!!

26.04.16 Band Sales and FOP day donation from Don and Rose McCallum

26.04.16 Jake and Amy's Funky Feet biscuit sales for FOP day. Isla is such an inspiration to us. With lots of love xx

23.04.16 Such an inspiring journey.


Running total

Total raised incl. Gift Aid:
Total donors:
Last donor:
Shelagh and Mick xx
Offline fundraising:
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