Micro And Anophthalmic Childrens Society
MACS (www.macs.org.uk) was formed in 1993, by a group of parents, all of whom had children with microphthalmia (small formed eyes), anophthalmia (no eyes) and coloboma (sight problems). Until then, most of them didn't know of any other children like their own and children with these conditions did not have the opportunity to meet each other, support each other and learn from each other. MACS is helping to change all that. MACS is a Registered Charity in the UK and is run by volunteer parents with children who have the eye conditions, and by young people who are directly affected. None of the committee receives any form of payment for the role and only claim the costs of minor admin requirements. Mutual support, from people who know what you are experiencing, either as a parent or young person, is something that we passionately believe in. That is why the charity is run entirely by volunteers who understand what is needed. We have come a long way since our humble beginnings back in 1993, but know that here is still a lot more to be done, if we are to achieve better understanding of the eye conditions, to fully support those affected by these conditions and for their families, and to improve opportunities for people with Microphthalmia, Anophthalmia, Coloboma and related eye conditions. The committee are very dedicated and have lots of ideas for the future to make these aims realities. Without funding these goals cannot be achieved.