Charities
Genetic Alliance UK is the national charity of over 150 patient organisations supporting all those affected by genetic conditions. Our aim is to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them. Your donation will help us to continue our vital work to provide better information and care to the millions of patients and their families affected by genetic conditions throughout the UK. If you would like more information or to find out more about us please visit www.geneticalliance.org.uk or call us on 020 7704 3141.
Cerebra is a national charity essentially about people, young people, whose lives are affected by the debilitation of brain injury- whose future can be made brighter with the right intervention and therapy. We raise money to fund groundbreaking research into brain injury and neurological disorders and to operate a network of parents and carers whose lives are affected. We act as a catalyst to provide interaction between professional research and the insight of parents and carers. Every year in the UK approximately 650,000 new babies are born and our research shows that 1 in 40 has a neurological problem. With the help of the public Cerebra can continue to offer its much needed services.
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Grayson's Great Fun Day Fundraising Page
On 26th August 2012 at 1pm I shall be having my head shaved for charity. This page is for you to sponsor me for doing so.
Why ? I hear you cry.
My little boy Grayson was born different than most children, but when you look at him you can't tell, Grayson by definition is a SWAN - SWAN is a term given to Children/Adults who have "a Syndrome Without A Name" Grayson has brain damage, severe Global Developmental Delay and is physically and mentally disabled.
You won't probably of heard of many children like Grayson who don't have a diagnosis they are rare, they are not publicised about as they don't have a "fashionable" condition, this doesn't make them less important and worthy of support and treatment but unfortunately more often than not this is what happens.
SWAN UK is a charity without any government funding set up by the Genetic Alliance to give families like us a voice and to have support for our special babies.
In the past 6 months they have helped my family and Grayson a great deal, supporting us with help/information, introducing us to families in our situations, sending support/love in tough times and I would be lost without them.
Cerebra our 2nd charity helps Children like Grayson with brain related injuries. Cerebra is a unique charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers. They do not receive any help from the government and rely entirely on the generosity of their supporters.
As well as shaving my head for the 2 charities above my hair is also being donated to Little Princess Trust to make wigs for children who have lost their hair due to cancer. http://www.littleprincesses.org.uk/default.aspx
The shaving of my head will take place at a funday event I am organising to be held in Canterbury in Kent, we would hope many of you can come join in on the fun of bouncy castles/raffles/food and drinks and much much more.
It would be great to show the world how fantastic SWAN and Cerebra are and the way they have helped change our lives and many many more.
Hi, thanks for visiting my page. Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.
Recent donors
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Katrina Moore £20.00 (+ £5.00 giftaid) 26.09.12 Finally, got a few more pennies to make £20. Well done hunny! x |
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Alison Inglis £10.00 (+ £2.50 giftaid) 30.08.12 You are doing an awesome job Kara x |
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Teresa and the Blakes xx £5.00 (+ £1.25 giftaid) 29.08.12 Well done Kara!!! You look beautiful :-) what an amazingly brave lady xxx |
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Nova £10.00 27.08.12 Hope it went well. X |
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Heather (aka SAHMlovingit) £10.00 (+ £2.50 giftaid) 27.08.12 Sorry I was late sponsoring you hun. I hope it all went well. Big hugs xx |
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Anonymous £30.00 (+ £7.50 giftaid) 26.08.12 |
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Emma & Teagan £25.00 (+ £6.25 giftaid) 25.08.12 Such a good cause. People like you make a difference to our children's lives xxxx |
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Jenny Paulin £10.00 (+ £2.50 giftaid) 24.08.12 you are a wonderful mummy xx |
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Elizabeth dimelow £10.00 (+ £2.50 giftaid) 24.08.12 Hats off to you!! One very brave and amazing mum, one in a million gorgeous boy x |
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Jo Shipley £10.00 (+ £2.50 giftaid) 24.08.12 Im sorry it's not more x I think u r amazing x good.luck xxx |
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Asher Wilson (mumof2boys_wholikestocreate) £10.00 (+ £2.50 giftaid) 24.08.12 Hi Kara, I follow your gorgeous family on Instagram. Good luck with your fun day and fundraising |
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Nicola @monters fun house £5.00 (+ £1.25 giftaid) 24.08.12 |
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Vikki @ Love From Mummy £10.00 (+ £2.50 giftaid) 24.08.12 You are such an inspirational person Kara! Grayson and Addison are blessed with one special mummy. Sorry it's not more xxx |
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Bex @ The Mummy Adventure £5.00 23.08.12 Grayson has a very special mummy x |
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Laura Bray £10.00 23.08.12 |
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HelpfulMum £5.00 (+ £1.25 giftaid) 23.08.12 What a fantastic thing to do. Sorry I can't give more but I would if I could! |
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Donna Bird £10.00 (+ £2.50 giftaid) 23.08.12 Well done Kara, proud of you, you are doing something amazing for your little man. |
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Sonia £25.00 23.08.12 I love you Kara & Grayson! You both make my heart swell with pride! Sorry I can't give more xxx |
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Keith and Suzanne Addison £20.00 (+ £5.00 giftaid) 23.08.12 You are so brave to have all of that beautiful hair shaved off but it pales into comparison with how brave and courageous you are as a fellow SWAN parent. All the best and I hope you don't mourn the hair loss too much! |
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sarah c £5.00 23.08.12 an amazing mum |
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Vicky £10.00 (+ £2.50 giftaid) 23.08.12 You sound like an amazing mummy |
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Gemma Lewis £5.00 22.08.12 good luck kara for sunday, sorry i cant make it x |
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Kim Constable £20.00 (+ £5.00 giftaid) 22.08.12 Saw your cause through Confessions of Mumpreneur. As a mum of four, I can imagine how heartbreaking it must be for you. I wish you love, joy and happiness and I pray they will find a cure for the beautiful Grayson. Love Kim |
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Catherine £5.00 (+ £1.25 giftaid) 22.08.12 Kara, you are doing so brave ... but all for brilliant cause. I wish you the very best of luck with your Fun Day xx @catdoran |
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Chris Morrison £20.00 (+ £5.00 giftaid) 22.08.12 Go Kara go |
