Charities
Genetic Alliance UK is the national charity of over 150 patient organisations supporting all those affected by genetic conditions. Our aim is to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them. Your donation will help us to continue our vital work to provide better information and care to the millions of patients and their families affected by genetic conditions throughout the UK. If you would like more information or to find out more about us please visit www.geneticalliance.org.uk or call us on 020 7704 3141.
Cerebra is a national charity essentially about people, young people, whose lives are affected by the debilitation of brain injury- whose future can be made brighter with the right intervention and therapy. We raise money to fund groundbreaking research into brain injury and neurological disorders and to operate a network of parents and carers whose lives are affected. We act as a catalyst to provide interaction between professional research and the insight of parents and carers. Every year in the UK approximately 650,000 new babies are born and our research shows that 1 in 40 has a neurological problem. With the help of the public Cerebra can continue to offer its much needed services.
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Grayson's Great Fun Day Fundraising Page
On 25th August 2012 I shall be having my head shaved for charity. This page is for you to sponsor me for doing so.
Why ? I hear you cry.
My little boy Grayson was born different than most children, but when you look at him you can't tell, Grayson by definition is a SWAN - SWAN is a term given to Children/Adults who have "a Syndrome Without A Name" Grayson has brain damage, severe Global Developmental Delay and is physically and mentally disabled.
You won't probably of heard of many children like Grayson who don't have a diagnosis they are rare, they are not publicised about as they don't have a "fashionable" condition, this doesn't make them less important and worthy of support and treatment but unfortunately more often than not this is what happens.
SWAN UK is a charity without any government funding set up by the Genetic Alliance to give families like us a voice and to have support for our special babies.
In the past 6 months they have helped my family and Grayson a great deal, supporting us with help/information, introducing us to families in our situations, sending support/love in tough times and I would be lost without them.
Cerebra our 2nd charity helps Children like Grayson with brain related injuries. Cerebra is a unique charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers. They do not receive any help from the government and rely entirely on the generosity of their supporters.
As well as shaving my head for the 2 charities above my hair is also being donated to Little Princess Trust to make wigs for children who have lost their hair due to cancer. http://www.littleprincesses.org.uk/default.aspx
The shaving of my head will take place at a funday event I am organising to be held in Canterbury in Kent, we would hope many of you can come join in on the fun of bouncy castles/raffles/food and drinks and much much more.
It would be great to show the world how fantastic SWAN and Cerebra are and the way they have helped change our lives and many many more.
Hi, thanks for visiting my page. Through Virgin Money Giving, you can sponsor me and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. I really appreciate all your support and thank you for any donations.
Recent donors
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Anonymous £20.00 (+ £5.00 giftaid) 16.05.12 |
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Katie Bedford £20.00 (+ £5.00 giftaid) 15.05.12 |
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Carrie Goodhew £10.00 (+ £2.50 giftaid) 15.05.12 Good luck Kara, you are doing an amazing job xx |
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Carolyn Brathwiate £10.00 (+ £2.50 giftaid) 14.05.12 Go girl! Will see you at the funday lovely lady. Azaria sends big dribbles and kisses to Grayson Love Carolyn and Azaria xxxx |
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Josepha Farrugia £20.00 (+ £5.00 giftaid) 13.05.12 Good luck with everything!! |
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Laura Tully ( nuttyn) £5.00 (+ £1.25 giftaid) 11.05.12 You're amazing! |
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Emily Woodger (Nash) £5.00 (+ £1.25 giftaid) 09.05.12 Wishing you all the best. x |
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Sara £20.00 (+ £5.00 giftaid) 03.05.12 We can't wait for the fun day Kara. All the best, love from Sara, Harry and Jakey xxx |
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@_xDollyx_ £10.00 (+ £2.50 giftaid) 13.04.12 All the best, such a good cause x |
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Helen £5.00 (+ £1.25 giftaid) 04.04.12 Just think you do an amazing job with your family, I follow you on twitter and wanted to give a small offering. xx |
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Dan, Em, Josh & Harry £20.00 (+ £5.00 giftaid) 02.04.12 We hope Grayson gets his trike so that he can enjoy riding around like we do. |
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Tim Marshall (@pixelcellar) £20.00 (+ £5.00 giftaid) 02.04.12 Good luck with the fundraising, hope you manage to gain more awareness and Grayson gets his Trike :-) |
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Liz Bedford £5.00 (+ £1.25 giftaid) 29.03.12 Good luck |
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Anonymous £10.00 (+ £2.50 giftaid) 26.03.12 |
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Anonymous £5.00 (+ £1.25 giftaid) 23.03.12 Good luck Kara! |
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Louisa Storet £5.00 (+ £1.25 giftaid) 01.03.12 Fabulous idea :) lots of love Louisa and my little SWAN Nathan xx |
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Zoe @tricky_customer £5.00 01.03.12 Good luck Kara! xxx |
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elliebaby2003 £10.00 (+ £2.50 giftaid) 28.02.12 With much love for amazing parents and their 2 gorgeous children |
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Clare GW £20.00 (+ £5.00 giftaid) 02.02.12 You're such a inspiration Kara. Grayson is very lucky to have you as his momma! xx |
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Victoria McGourlay £10.00 (+ £2.50 giftaid) 01.02.12 Love, Victoria & Woodrow x |
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Claire (kawaiigirl79) £20.00 (+ £5.00 giftaid) 30.01.12 |
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Tracy £2.00 27.01.12 Not much but wanted to give something. You have my full admiration and support. Amazing! |
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Bec (@bublet2011) £5.00 (+ £1.25 giftaid) 26.01.12 I'm sorry it's not more, I hope you do fantastically, you all deserve it! Love me & Bella xx |
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natalie £5.00 (+ £1.25 giftaid) 25.01.12 hope you have a great day on the fundraising day :) loves noodles! from flickr x |
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Katie @mummydaddyme £5.00 (+ £1.25 giftaid) 23.01.12 Hi Kara, Sorry its not much but I wanted to support you. xx Katie @mummydaddyme |
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Anonymous £20.00 22.01.12 |
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Nichola iDesignbaby £3.00 (+ £0.75 giftaid) 22.01.12 I'm a bit skint but wanted to give something for Grayson. |
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Victoria Marks £5.00 (+ £1.25 giftaid) 16.01.12 Great cause - good luck with your fundraising x |
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Tam De Haan £100.00 (+ £25.00 giftaid) 16.12.11 |
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Katrina Moore £10.00 (+ £2.50 giftaid) 08.12.11 Good luck with the fundraising it'll be a fabulous event! |
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Melanie Walsh £10.00 (+ £2.50 giftaid) 07.12.11 |
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Emily Clark £10.00 (+ £2.50 giftaid) 01.12.11 Kara. Your babies will be so proud of such an inspirational mummy- well done xx |
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Tamsin £5.00 01.12.11 Good luck, great cause and a great idea xx |
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Rosa Evans £10.00 29.11.11 Best of luck with the fun day Kara! You are doing an amazing job with your beautiful babies xxx |
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Sam Collins £10.00 (+ £2.50 giftaid) 29.11.11 Good Luck Kara!! What an inspirational person you are. Love to you all xx |

