Charity
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Action Duchenne is a national charity that aims to find a cure for Duchenne, a severe genetic muscle wasting disease. The condition affects mainly boys and without treatment most of these young men are completely paralysed by their early teens and die by their late teens or early 20s. To ensure we do not lose another generation of young people to this terrible disease we need more funding for research and treatment
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Jonny and Ed's fundraising page
Ed and Jonny are running the 2011 London Marathon for Action Duchenne. They are trying to raise as much money as possible for funding to find a cure for this terrible muscle wasting disease which is fatal in young men around the world.
Jonny's little brother Tomos who is 3 is a sufferer and ever since finding out this news he and his family have done a number of fund raising events over the last few years to raise money for this worthy charity and Ed and Jonny are desperate to put in a good performance and raise as much money as possible in completing the marathon.
Ed and Jonny would be so grateful if you could sponsor them for this event and the Spowart family are obviously hugely grateful for any contribution received to try and find a cure for this horrible disease.
Through Virgin Money Giving, you can sponsor us and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. We really appreciate all your support and thank you for any donations.
Recent donors
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Josh, Helen and Hannah Brown £20.00 (+ £5.00 giftaid) 15.05.11 Well done and sorry this is so late, hope you've fully recovered now. |
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The Bricknell Family £20.00 (+ £5.00 giftaid) 12.05.11 |
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Sian and Tom Allan £20.00 (+ £5.00 giftaid) 11.05.11 What a great achievement .... one I won't be trying to emulate! Tom |
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Olivia du Parc Braham and Joshua £20.00 (+ £5.00 giftaid) 09.05.11 Well done on a marathon effort!! |
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David, Emma and Archie Fletcher £100.00 (+ £25.00 giftaid) 08.05.11 Great effort. Sorry the cash is late! |
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Richard, Kevin and Gibbo £50.00 (+ £12.50 giftaid) 05.05.11 |
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Thomas Noble £100.00 (+ £25.00 giftaid) 05.05.11 |
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Rebecca Torrance Jenkins £10.00 (+ £2.50 giftaid) 04.05.11 Well done boyos!! V proud XX |
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Rachael, John & William £20.00 29.04.11 Congratulations Edwin, sterling work for what is clearly a deserving cause. We are all very proud of you! XXX |
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Helen Hudson £20.00 (+ £5.00 giftaid) 26.04.11 So proud of you. Love you loads. Monkion. xxx |
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Steve and Nick Corbett £50.00 (+ £12.50 giftaid) 24.04.11 Well done on completing the marathon. |
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jfg £20.00 (+ £5.00 giftaid) 22.04.11 You forgot to ask my advice about the 1967 I ran in for Oxfam...! |
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Jon Chatfield £50.00 (+ £12.50 giftaid) 21.04.11 Top effort and best wishes. |
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James Page £10.00 (+ £2.50 giftaid) 21.04.11 |
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Faye & Mickey £20.00 (+ £5.00 giftaid) 20.04.11 Well done! |
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Anonymous £50.00 (+ £12.50 giftaid) 19.04.11 Well done, Monkey! XXX |
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Paul Mahoney £20.00 (+ £5.00 giftaid) 19.04.11 Well done gents. |
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John Hartley £20.00 (+ £5.00 giftaid) 19.04.11 Well done chaps! |
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Paul Koloi £30.00 (+ £7.50 giftaid) 19.04.11 Well done guys, great cause and good luck in reaching your target amount. See you soon. Elvis and family |
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Rob Davies £20.00 18.04.11 |
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Anonymous £50.00 (+ £12.50 giftaid) 18.04.11 Hi Edwin - must be in the genes - with love from 'The Bitton Clan' and Auntie Barbara x |
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Chris, Rachel, Marie & Graeme Hughes. £30.00 18.04.11 Hello , we hope you are not too sore today! You have 2 weeks to recover and rest. Wishing you both a great holiday. Christopher Hughes & family. |
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William Allen (7T) and family £26.00 (+ £6.50 giftaid) 17.04.11 Well done! Feeling weary? |
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Liz, Nick, Marcus, Luke, Sarah and Max Bliss £75.00 (+ £18.75 giftaid) 17.04.11 Hope you did better today than Bolton Wanderers did............it must have been better!! It must have been very hot, though. |
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Royo Gascon Family £102.00 (+ £25.50 giftaid) 17.04.11 We just wanted to make sure you would finish it!! Xxx Really proud of you both. |
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Bentos £20.00 (+ £5.00 giftaid) 17.04.11 You looked as if you were just readied to burst into a sprint for the line when we saw you at 21 miles... Well done chaps, great effort. |
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Reece and Fabregas Brown £50.00 (+ £12.50 giftaid) 17.04.11 Hi Sirs, I have just seen you running on the bridge! Not really, I am still looking out for the both of you. Hope you do well. All the best, Reece |
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Luke and Sam Ide xx £20.00 (+ £5.00 giftaid) 17.04.11 Good luck today!! Thank you for a great holiday. All the best the Ide family |
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Harvey and Monty Coulson £50.00 (+ £12.50 giftaid) 17.04.11 Good luck Mr S and Mr B. We won't say who we think will win! Harvey and Monty Coulson |
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Andy Longthorp £20.00 (+ £5.00 giftaid) 17.04.11 Hats off! |
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Rhona £50.00 (+ £12.50 giftaid) 16.04.11 Good luck guys! Hope you have been asleep for hours in preparation for tomorrow... |
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Dennis, Ashlea, Caetlinn and Maddison £20.00 (+ £5.00 giftaid) 16.04.11 All the very best of luck tomorrow! Our thoughts will be with you both... |
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Joe, Alex, Katie and Guy Froud £50.00 (+ £12.50 giftaid) 16.04.11 Best of luck and hope you do well from the Frouds |
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Cooper family £50.00 (+ £12.50 giftaid) 16.04.11 Rather you than us. Good luck and a great effort |
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Baby Edwin £10.00 (+ £2.50 giftaid) 16.04.11 Dear Uncle Ed, although I can't even walk yet running 25 miles sounds pretty tough so thought I'd better sponsor you too and wish you luck. Love, snuggles and snuffles Baby Edwin xxxxxxx |
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Charlotte, Anthony, Peter & Helen Fraser £50.00 (+ £12.50 giftaid) 16.04.11 Good Luck Edwin, look after your poor feet after the race, we'll be looking out for you tomorrow. Love from all us Frasers! xxxxxx |
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the Boys-Stones £50.00 (+ £12.50 giftaid) 16.04.11 Great effort - enjoy it! love the Boys-Stones |
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Archie and The Barker Family £20.00 (+ £5.00 giftaid) 16.04.11 Rather you than me! Great charity, masses of luck. |
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Guy, Freddie, Charles and Victoria. £50.00 (+ £12.50 giftaid) 15.04.11 Good luck from all of the Josephs. Hope you both do really well. PS maybe all of this fitness wil let Bowden be able to get me in our game of it. |
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Vicky and Chris Meering £11.76 (+ £2.94 giftaid) 15.04.11 Good luck |
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Leeds £26.00 (+ £6.50 giftaid) 15.04.11 Good luck fellas....fire in the belly, Ice in the Mind....Love from Leeds, Katie & Millie |
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Emrys and Angela Davies £50.00 (+ £12.50 giftaid) 15.04.11 Good for you, Ed |
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Paula Sheridan £26.20 (+ £6.55 giftaid) 15.04.11 Good luck! Matt told me about this. Great charity, Nick and his team are brilliant. I'll be at the FetchEveryone site mile 22 (visible from mile 13.5 too) if you need support/jellybabies. look out for LOTS of red and yellow balloons. |
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Darms £20.00 (+ £5.00 giftaid) 15.04.11 Good Luck fellas. See you at the finish line with a beer. |
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Heather Scanlon £10.00 (+ £2.50 giftaid) 14.04.11 You can do it Jonathon if little sis and dad can you surely can, Good Luck will be thinking about you xx |
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Tom Wilkinson £50.00 14.04.11 With best wishes and lots of luck from Tom Wilkinson & Family |
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David £50.00 (+ £12.50 giftaid) 13.04.11 |
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Luke and Max £50.00 (+ £12.50 giftaid) 13.04.11 Good luck hope you do well. Luke and Max Bliss |
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Ben and Joe Wald £20.00 13.04.11 Lots of luck! We'll be looking out for you on Sunday. |
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Nikhil £10.00 (+ £2.50 giftaid) 13.04.11 Good Luck! |
