Charity
The Cystic Fibrosis Trust is the UK's only national charity dealing with all aspects of Cystic Fibrosis. It funds research to treat the symptoms of CF and to find an effective treatment. It also aims to ensure appropriate healthcare for those with Cystic Fibrosis and provides information, advice and support to people with CF and their families across the UK. Cystic Fibrosis is one of the most common, life-threatening diseases in the UK. It affects over 9,000 people and 1 in 25 of us carries the faulty gene that causes Cystic Fibrosis. If two carriers start a family, each child has a 1 in 4 chance of having Cystic Fibrosis. Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick, sticky mucus making it hard to breathe and to digest food. People with Cystic Fibrosis have to endure a rigorous daily treatment regime including physiotherapy to clear the chest, inhaled and injected drugs to thin the mucus and fight infections and dozens of enzyme pills to help digest food. Each week, five babies are born with CF and sadly, each week three young lives are lost. Only half of those with Cystic Fibrosis are likely to live past their late 30s, but a baby born today can expect to live longer. We seek to continually improve standards of care for people with CF; we commission cutting-edge clinical and scientific research; and provide practical and accurate information to people with CF and their families. None of this would be possible without the support of the CF community and the generosity of the public.
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Climbing Kilimanjaro for Cystic Fibrosis
roforCF
Please help us in finding a Cure for Cystic Fibrosis
My name is Leanne Harper and this year I turn 25 years. I suffer with Cystic Fibrosis (CF) and Cystic Fibrosis related Diabetes. I am the oldest of 20 suffers on the Island.
Living with this disease my everyday living consists of taking 20-30 tablets to help digest my food, daily physiotherapy and nebulised antibiotics to help keep my lungs free from infection, I also do regular home Intravenous Antibiotics when I have a chest infection. Two years ago I developed CF related diabetes which I have to inject insulin to control my blood sugars. I deal with this from day to day and still manage to live independently.
This October I am planning to climb Mount Kilimanjaro to help raise money for research into finding a cure for CF, with a Heart and Lung disease this is going to be a big physical ask from my body.
Supporting me on my trip will be my two cousins Jennifer and Karen Davies, also my good friend Sophie Elsley. Our training is well under way, we are hiking twice a week and using the gym. We are entering the Parish walk to help raise funds and also help with our training.
Our goal is to raise £7,000, this will help fund the medical and scientific research to develop a cure and provide effective treatment for CF sufferers like myself.
If you could help us with raising our target of £7k that would help not only increase the awareness of CF but help make this event a huge success.
Thanks Leanne
Recent donors
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Lynsey £20.00 05.12.10 Well done, brilliant achievement! :o) xxx |
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Jenny Davies £60.00 (+ £16.92 giftaid) 19.11.10 In respect of cash given to me over the past few weeks RG/Ash/Kim |
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Angie Aire £10.00 04.11.10 Leanne - congratulations on reaching the summit of Kilimanjaro- no small task! Well done to your team mates too! |
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Kate Felton £10.00 (+ £2.82 giftaid) 03.11.10 Well done to all of you, especially my ex-pupils, Jenny and Sophie! Miss F ;-)) xxx |
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Tommy Crowe £10.00 (+ £2.82 giftaid) 03.11.10 All the best to Jenny & Karen and the whole team |
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Joanne Standish £20.00 (+ £5.64 giftaid) 31.10.10 This is from Nathan hun xXx |
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Natalie Yates £20.00 (+ £5.64 giftaid) 30.10.10 So proud of you all....good luck :o) x |
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Sarah Craine £5.00 (+ £1.41 giftaid) 28.10.10 Good luck girls :) |
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Ste Winrow £20.00 27.10.10 Good luck Jenny -- enjoy yourself |
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Dom, Sarah, Lauren and Bonnie £50.00 (+ £14.10 giftaid) 21.10.10 Good luck to everybody doing the climb. Hope you all have an amazing time and raise loads more money for a worthy cause. What an amazing experience and achievement it will be to climb Killamanjiro, have a safe trip, see you when you get back x |
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Jenny Davies £20.00 15.10.10 In Respect of £20 given by Paul Massey. |
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Sally Burman £20.00 (+ £5.64 giftaid) 14.10.10 Good Luck to you and all the team Jen - what you are doing is amazing! xx |
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Amy Bromley £50.00 (+ £14.10 giftaid) 08.10.10 GOOD LUCK!! My very best wishes to you all xxx |
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Jonny, Kerry, Dan & Daisy £20.00 (+ £5.64 giftaid) 01.10.10 Good luck to you all |
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Kirree Knight £10.00 27.09.10 Good luck girls, you will all do amazing.. Will be thinking of you all when your up there.. And i hope you get all the money u need for Cystic Fibrosis Trust.. |
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Jessica Sherwin £10.00 31.08.10 Love you always Aunty Sophie and Aunty Leanne! Good luck and come back safe! xx |
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Fiona Gell £20.00 (+ £5.64 giftaid) 19.08.10 Good luck guys! I climbed Kili a few years ago and it is the most amazing experience ever! Just keep going even when you feel like stopping!!! |
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Amanda Warrilow £10.00 11.08.10 Good luck to you all, and especially to you Leanne. My 6-yr old daughter has CF, and I can only hope and pray that she has the health and spirit that you clearly do when she's your age :). Have a fantastic time. |
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Uncle Lee Lee £50.00 (+ £14.10 giftaid) 05.08.10 To my favourite niece I am very proud of you. To all the other girls who are going with Sophie can you make sure she comes back down again. |
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karen keiley £270.00 04.08.10 From your friends down under Proud of you - go girls |
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Nick Bowden £20.00 (+ £5.64 giftaid) 29.07.10 Good luck to you all x |
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Jessica Sherwin £10.00 27.07.10 My mummy gave me a £10 note i held it for a while and wondered what to buy i remembered CF and someone special to me and then began to cry,I sat and thought a toy can wait who needs this money more, its my Aunty Leanne of course lets help her find a cure! |
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Natasha Moloczij £100.00 (+ £28.21 giftaid) 27.07.10 |
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Damian Moloczij & Chevon Robertson £300.00 23.07.10 Very proud of my cousins! Jen, Leanne, Karen and her friend. In supporting Leanne on raising awareness and funds towards CF. I’m sure you will not only achieve but inspire many. All the Best lots of love. |
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Maximo £20.00 (+ £5.64 giftaid) 19.07.10 My best wishes from Argentina ! I am a father of 2 CF kids (4 year and 6 months) and really turn optimistic when see CF people facing these challenges !!! Best wishes but mainly enjoy every single minute !!! |
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Mike Davies £20.00 09.07.10 Good luck to you all! |
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chris knowles £10.00 (+ £2.82 giftaid) 04.07.10 good luck to you all for a great cause. |
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Daniel Lonergan £10.00 (+ £2.82 giftaid) 29.06.10 It aint exactly a million pounds but every little helps, am sure you, Jenny and the others will do it no problem. Wish you loads of luck !!! |
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Liz Moore £20.00 (+ £5.64 giftaid) 28.06.10 |
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Bethan Williams £10.00 25.06.10 Couldnt ask for 2 better people for my daughter 2 look up to! You guys are going to make us so proud! Good luck with this amazing experience! Much loves xx |
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Jessica Sherwin £10.00 25.06.10 Good luck to the best Godmothers ever Aunty Sophie and Aunty Leanne, im going to miss you both when your climbing killi! Be safe love you lots xx |
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Lisa Frost £10.00 25.06.10 Good Luck!! |
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Liam Cowin £100.00 24.06.10 |
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Lynda Harper £100.00 (+ £28.21 giftaid) 11.06.10 So proud of you xxx |
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Margot and Arne Dahn £30.00 (+ £8.46 giftaid) 01.06.10 Good Luck Lovely; we'll be rooting for you at the top of glen maye hill in the parish! xxx |
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Dave, Julie, James and Harry Stockton £100.00 (+ £28.21 giftaid) 01.06.10 |
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Paul & Mom (Swancott) £40.00 01.06.10 Good luck Leanne and friends with this great adventure |
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Dee McLoughlin £10.00 (+ £2.82 giftaid) 01.06.10 Best of luck to all of you, I hope you get to enjoy it |
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sonja shimmin £10.00 (+ £2.82 giftaid) 29.05.10 Wow what a challenge - go for it girls, enjoy but keep safe. |
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Julian Chappell £10.00 (+ £2.82 giftaid) 28.05.10 Good Luck |
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Kim and Geoff Makin £25.00 27.05.10 Good luck to you all, enjoy the adventure and take care. Kim, Geoff, Chloe and Alex Makin x |
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Bernie Skelton £50.00 27.05.10 Best of luck |
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Alison Howard £20.00 27.05.10 Wishing you good luck with your climb girls. You're doing something very special on behalf of all sufferers. X |
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Marie-Claire Buckleigh £5.00 26.05.10 Good luck and be safe xxx |
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Ray & Gilli C £50.00 26.05.10 Go for it Girls and conquer the "Hill". All the best love Ray & Gilli C xx |
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Claire Taylor £30.00 (+ £8.46 giftaid) 25.05.10 Good Luck Wife x |
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Anonymous £250.00 21.05.10 Good luck Leanne from all at Elmfield. |
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Sarah Craine £10.00 (+ £2.82 giftaid) 20.05.10 Good luck Girls :) |
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Anonymous £10.00 (+ £2.82 giftaid) 19.05.10 |
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Tracy Isaac £20.00 (+ £5.64 giftaid) 18.05.10 Good luck girls! Jenster you breeze through outdoor so you'll have no problems with this! xx |
