Maria Jones

Charity

FOP Friends
FOP Friends (Friends of Oliver) is a charity set up to help Oliver and other people affected by FOP. Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles and other connective tissues such as tendons and ligaments turning otherwise healthy people into human statues. A healthy mind locked inside a frozen body. The condition is so rare (1 in 2,000,000) that little commercial interest exists in finding a cure so Oliver and his friends need your help. Please be a FOP Friend by supporting our charity.


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William and Friend's Fundraising Page

Fundraiser: 
Maria Jones

My page: http://uk.virginmoneygiving.com/MariaJones2

Hi everyone

Thanks for visiting my fundraising page.

I'm William and I'm 10 years old. 

Having raised some money over the last few months for the charity FOP Friends I decided I would like to do some more for them, and my friend, Archer and I have come up with our latest plan.   

We have arranged The Ramsbottom Twin Peaks - a sponsored walk which we would like all our friends and families to take part in. 

On 1st July 2017 we will be walking from the centre of Ramsbottom up to the Grant's Tower, returning back to town.  Then we will walk up through Stubbins and Buckden Wood onto the Holcombe Moor where we will walk back to Holcombe Tower and then down through Redisher Woods finishing up at the Hare and Hounds.  

We would like as many people to join us and in doing some help to raise some money at the same time all for FOP Friends. 

To find out more about FOP Friends look at their website which is www.FOPFriends.com where you will find out about Oliver.

Oliver suffers from FOP which stands for Fibrodysplasia Ossificans Progressiva.  It is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles and other connective tissues such as tendons and ligaments. Bridges of extra bone develop in many cases across the joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. 

Thank you!

William X

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