Maria Jones

Charity

FOP Friends
FOP Friends (Friends of Oliver) is a charity set up to help Oliver and other people affected by FOP. Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles and other connective tissues such as tendons and ligaments turning otherwise healthy people into human statues. A healthy mind locked inside a frozen body. The condition is so rare (1 in 2,000,000) that little commercial interest exists in finding a cure so Oliver and his friends need your help. Please be a FOP Friend by supporting our charity.


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William Jones's fundraising page

Fundraiser: 
Maria Jones

My page: http://uk.virginmoneygiving.com/MariaJones2

Hi.

Thanks for visiting my fundraising page.

I'm William and I'm 9 years old. 

On 12th February 2017 I am running a sweet stall at the monthly Artisan and Farmers Market in Ramsbottom where I live.  We will be based in the Civic Hall for the day where I will be running the stall with some of my friends and class mates.   

Having raised some money a few months ago for the charity FOP Friends I decided I would like to do some more for them, and came up with the idea of the sweet stall.  Let’s face it, who doesn’t like sweets!

I have made all the plans for how we will do this, arranged where we will do this, created some advertising, contacted local businesses for sweet donations, ordered more sweets and basically organised everything.  I have really enjoyed doing this and would like to raise lots of money for them to help raise awareness and research.

If you are not able to come to the stall on 12th February in Ramsbottom please don’t worry.  Why not buy a virtual bag of sweets from us instead.  Every 100g bag of virtual sweets costs £1.00 with all proceeds going to FOP Friends.  Just donate and at the same time why not tell us your favourite sweets when you donate!

My mum introduced me to FOP Friends and we talked about Oliver who has this horrible disease.  Hopefully he will be able to come and visit us at the stall too.

To find out more about FOP Friends look at their website which is www.FOPFriends.com.

Oliver suffers from FOP which stands for Fibrodysplasia Ossificans Progressiva.  It is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles and other connective tissues such as tendons and ligaments. Bridges of extra bone develop in many cases across the joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. 

Thank you!

William X

Recent donors

15.02.17 well done William

11.02.17 What a fab thing to be doing William - well done!

08.02.17 What a wonderful thing to do William. Good luck on the 12th. xxx

07.02.17

07.02.17 Well done William xx

01.02.17 Well done William! I wont be able to visit the market on the day so please accept this donation. I am sure you will sell plenty and your hard work will pay off, and you' have a great day!

01.02.17

01.02.17 Good luck for the 12th. What an amazing think to do. I bet your family are so proud of you.

31.01.17 Midget gems

31.01.17 Chewing nuts!

£136.00

Running total

Total raised incl. Gift Aid:
£170.00
Total donors:
10
Last donor:
The Earnshaw's
15.02.17  
Offline fundraising:
£0.00
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