Charity
The Histiocytosis Research Trust was set up as a registered charity in 1991 and is dedicated to promoting and funding scientific research into uncovering not only the causes of the histiocytosis diseases, Langerhans' Cell Histiocytosis and Haemophagocytic Lymphohistiocytosis, but also ensuring early diagnosis, effective treatment and a cure. The Trust also aims to support patients and their families as well as raise public and professional awareness about histiocytic disorders. We have an independent scientific review board which allocates funds to vital research projects. To date, The Trust has funded a significant number of research projects. The H R Trust is closely linked to the Nikolas Symposium, an annual conference attended by leading doctors and scientists from all over the world and also has ties to The Artemis Association, The Histiocyte Society, Euro Histionet and The Histiocytosis Association of America.
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Team Find a Cure for Histio
Hi, thanks for visiting my page. Through Virgin Money Giving, you can sponsor all those taking part in the BUPA London 10,000 and donations will be quickly processed and passed to The H R Trust. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. We really appreciate all your support and thank you for any donations.
I was just eight weeks old when I was diagnosed with Langerhan’s Cell Histiocytosis - a cancer-like disease which travels through the blood stream causing damage to healthy parts of the body. The possibility of death was very real and my parents were told to prepare themselves. However, against the odds and thanks to the dedication of my doctor and parents, I survived. Others have been less fortunate. Since then my family and I have devoted ourselves to finding a cure for both Langerhan’s Cell Histiocytosis (LCH) and Haemophagocytic Lymphohistiocytosis (HLH), another Histiocytosis disease.
My diagnosis prompted the formation of The Histiocytosis Research Trust in 1991. The Trust’s main aims are to reach out to parents and patients seeking support and advice, to fund international research projects and host Parent and Patient Road Shows. For further information, please visit www.hrtrust.org
Since Histiocytosis is classed as too rare to be allocated any funding from either the Government or pharmaceutical companies, The Trust is reliant on the donations and fundraising efforts of generous individuals and families affected by the diseases.
On Sunday May 27th, some of the families whose children have been affected by LCH and HLH will be taking part in the BUPA London 10,000 and will become part of Olympic history as they experience the Olympic course before the official athletes do. Further information can be obtained from www.london10000.co.uk
Please pledge your support to them so that The Trust can become even closer to achieving its goal of finding a cure. Your gift will help provide a brighter future for the many thousands of children and adults who are battling these illnesses each day. Their lives depend on it! Every child and adult with either LCH or HLH is our child and part of our family. We want to give them a fighting chance and a promise of tomorrow. So please give generously.
I would personally like to thank you for taking the time to read this and for pledging your support.
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