Paula Cowley


Ichthyosis Support Group.
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public. Ichthyosis is a rare genetic condition which predominantly affects the skin. It can affect as few as 1:300,000 people depending on the type of ichthyosis, of which there are many. It is a lifelong condition, usually presenting at birth and may be fatal. For many the daily bathing routine is rigid. Ichthyosis skin requires rigorous scrubbing to remove excessive growth and prevent infections that can cause death. Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking. If left to dry out it can cause contractures, which can even break bones in tiny fingers and toes and the sufferer endures excruciating pain.
Only 68 days to go!

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Paula Cowley's fundraising page

Paula Cowley

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In October 2016 I was both shocked and terrified to find out I had been given a ballot place for the 2017 London Marathon and decided I would really like to raise money for the ISG. ISG was an easy decision for me because they are a fantastic charity and do so much for families like mine, who are affected. I will never forget how it felt to have support when we needed it for our daughter Emma about 14 years ago!

Having made the decision to run the marathon, I have since decided to make it an extra challenge by running a second one 8 days later in Milton Keynes!

I started running a few years after I found out I had a benign brain tumour in March 2009, for which I had radiosurgery for later that year.

I was fine other than losing my hearing in my left ear but piled on weight and was feeling very sorry for myself. I started running to lose the weight and it quickly became my saviour.

Recent donors

16.02.17 Good luck gal you will smash it! Alex xx

14.02.17 Good luck Paula! Xx

12.02.17 Good luck crazy lady. I know you'll smash it xx

11.02.17 You go girl!


11.02.17 good luck u cwazy lady im sure youll smash it x

11.02.17 You total nutter!! Good luck with the challenge lovely lady xx

11.02.17 This really is incrediable you will do amazing! Huge amount of luck enjoy it if you can xx

11.02.17 You are a total inspiration darlin ... so proud of you ... for a great cause... youll do absolutely amazing ❤❤❤

04.02.17 Good luck mumsy, love you lots!!x

01.02.17 Good luck you mad woman! No doubt you will achieve this though.

01.02.17 You are nuts Paula but I think to achieve amazing things you have to be!! Good luck and well done for all your hard work!!! xxx

01.02.17 Good luck you mad mad lady xxxx

31.01.17 Good luck Paula you mental bird x


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