The NCCA UK helps children access potentially life-saving treatment, whilst supporting research that not only aims to introduce new treatments but also bring existing internationally available options here to the UK. We support parents by sharing the most current resources available for neuroblastoma treatments and providing access to other parents who want to share their knowledge and experiences.
05 December 2013
I am fundraising as a personal challenge. My challenge is Appeal
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In September 2009 our adorable 5 year old son Aarin was diagnosed with Stage 4 Neuroblastoma, a deadly and aggressive form of childhood cancer with a very poor survival rate.
The 12cm tumour resided in his abdomen and had spread to his bones and bone marrow. The little warrior has gone through one of the most gruelling treatment any child can take. He had received 13 doses of chemotherapy, radiotherapy on the tumour, surgery, MIBG therapy – a type of radioactive chemotherapy - and high dose chemotherapy over the last 18 months to conquer this deadly disease. He has made remarkable progress against all odds but has a lot more to endure to fight this deadly disease.
The cancer has now been eradicated from his bones and bone marrow and his tumour has now reduced to less than 4cms with mostly dead cells. However, the biggest risk to his long term survival is if the cancer returns as there is no curative treatment if that happens. There is a very high risk of relapse (about 80%) but fortunately a new treatment can address that with remarkable recent successes.
His doctors have now recommended that Aarin receives Immunotherapy treatment which is not available for him in this country. He will have to travel to Germany to receive it. This is a very painful but life saving treatment geared towards preventing relapse and is Aarin’s best chance for long term survival.
The 2Simple Trust charity will be funding all Aarin’s treatment and any other related costs. We are also raising money locally with the help of Aarin’s playgroup to try and cover our own travel costs.
Through Virgin Money Giving, you can make a gift and donations will be quickly processed and passed to my charity. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. We really appreciate all your support and thank you for any donations.
The work of the 2Simple Trust will shortly be transferred to a new charity set up specifically for the purpose called The Neuroblastoma Children’s Cancer Alliance. The Neuroblastoma Alliance helps children and families affected by neuroblastoma through providing financial assistance for children’s treatment.
Without the support of the 2Simple Trust/Neuroblastoma Children's Cancer Alliance UK (NCCA UK), the outlook for Aarin and children like him would be very poor. We want to raise funds for the charity to make sure that they will always be able to reach out and extend a lifeline to other children with neuroblastoma in future.
All donations are paid into NCCA UK’s general funds to further its general charitable purposes. The funds raised by this Journey are not restricted for Arain’s use. However, the trustees of NCCA UK have agreed to designate funds raised by this Journey to help and her family pay for potential future treatment costs and all other associated costs including travel and accommodation. If Lilly no longer needs the funds, or if the trustees decide, at their absolute discretion, that the funds should be used for a different purpose, they may redesignate all or part of the funds for NCCA UK’s general charitable purposes. We are very grateful for your charitable donation. For further information about NCCA UK and how we spend donations, please see our FAQs http://www.ncca-uk.org/faqs
Thank you for your support,
Aarin Bhatt’s family
Anonymous £20.00 (+ £5.00 giftaid)
Anonymous £10.00 (+ £2.50 giftaid)
02.06.11 God Bless to you and your family
Anonymous £30.00 (+ £7.50 giftaid)
Anonymous £10.00 (+ £2.50 giftaid)