Charity

Duchenne UK
Duchenne UK is a lean, ambitious and highly focused charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. The charity has been formed by the coming together of Joining Jack and Duchenne Children's Trust, the two biggest funders of research in the UK in the last three years. We are committed to continuing to drive momentum to deliver treatments to help this generation of those with DMD.
Only 24 days to go!


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Ali Robertsons DashMAX fundraising page

Fundraisers: 
Alasdair robertson

My page: http://uk.virginmoneygiving.com/team/dashmax17

In December 2014 Felix, my now five-year-old son, was diagnosed with Duchenne Muscular Dystrophy, an incurable and fatal muscle wasting disease that kills more children than any other genetic condition. There is accelerating deterioration from birth, resulting in a significant decrease in quality of life by age 7 to 8, wheelchair dependency by early teens, total dependency by late teens and a lingering death in mid-twenties from lung failure and heart disease.

The reality is not as hopeless as it sounds, thankfully! Real progress is being made in the development of new treatments that have the potential to alter and hopefully even cure Duchenne. And in the shorter term, ongoing research is identifying a combination of drugs approved for the treatment of other diseases that are showing real promise in slowing and perhaps even halting the progress of the disease.

Whether it’s novel or repurposed drugs, their development costs a lot of money, which is why I’m cycling from London to Monaco, covering 1,500 km’s and climbing 18,000 m’s in 9 days, with the aim being to raise as much money as possible to further vital research and get a combination or repurposed drugs in to trials and patients as quickly as possible.

All the money raised will go to Duchenne UK. The charity was founded by Emily Crossley and Alex Johnson, both mothers of Duchenne boys. They’re unbelievably passionate and effective and almost all (90% plus) of the money they raise and receive funds research and trials. The charity is transforming the outlook for all Duchenne patients.

There really is no time to waste if we’re going to save this and future generations of boys so please give as generously as you possibly can.

THANK YOU!

Recent donors

23.05.17 a pleasure to support such a worthy cause

23.05.17 Have fun!

23.05.17 Good luck with the cycle. Sue f

23.05.17 All power to your elbow /thighs /feet etc

23.05.17 with best wishes

23.05.17 Well done Ali....wishing your legs and everything else to stay strong ! From Drew and Katy Lee

23.05.17 Good luck - with both the cycle and the continued research

23.05.17

23.05.17

23.05.17 Our love and support to you and Felix.

23.05.17

23.05.17 Good luck with the ride and the fundraising! Best Wishes Eric

23.05.17 Don't let Tommo use your bike he's too heavy!

22.05.17 go for it.

22.05.17 Best wishes Alasdair Hope it all goes well

22.05.17 I Love the title of the Email, all the best with the cycle

22.05.17 As Billy Connolly would say: "Go yirsel Big Man". Have a great and safe cycle. Amazing effort!

21.05.17 Go Ali! Good luck and love to all x

20.05.17 Best of luck with the cycle - inspiring stuff!

19.05.17 Good luck

19.05.17 Ali, you remain an inspiration. Best wishes to you and your family

19.05.17 All the very best wishes for his recovery.

19.05.17 Good Luck to you Ali and the rest of the riders - an absolutely brilliant cause.

19.05.17 Best of luck with the research and for a successful outcome. Enjoy the ride!!

17.05.17 Hi Robyn and Ali! It's Eleri here over in San Francisco. I'm hoping and praying for Felix's recovery. With all my best and love to you all, Eleri xxxx

£47,195.00

Running total

Target:
£75,000.00
Total raised incl. Gift Aid:
£48,618.75
Total donors:
62
Last donor:
Faye Shorey
23.05.17  
Offline fundraising:
£37,850.00
Donate now

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