Charity

Duchenne UK
Duchenne UK is a lean, ambitious and highly focused charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. The charity has been formed by the coming together of Joining Jack and Duchenne Children's Trust, the two biggest funders of research in the UK in the last three years. We are committed to continuing to drive momentum to deliver treatments to help this generation of those with DMD.
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Ali Robertsons DashMAX fundraising page

Fundraisers: 
Alasdair robertson

My page: http://uk.virginmoneygiving.com/team/dashmax17

In December 2014 Felix, my now five-year-old son, was diagnosed with Duchenne Muscular Dystrophy, an incurable and fatal muscle wasting disease that kills more children than any other genetic condition. There is accelerating deterioration from birth, resulting in a significant decrease in quality of life by age 7 to 8, wheelchair dependency by early teens, total dependency by late teens and a lingering death in mid-twenties from lung failure and heart disease.

The reality is not as hopeless as it sounds, thankfully! Real progress is being made in the development of new treatments that have the potential to alter and hopefully even cure Duchenne. And in the shorter term, ongoing research is identifying a combination of drugs approved for the treatment of other diseases that are showing real promise in slowing and perhaps even halting the progress of the disease.

Whether it’s novel or repurposed drugs, their development costs a lot of money, which is why I’m cycling from London to Monaco, covering 1,500 km’s and climbing 18,000 m’s in 9 days, with the aim being to raise as much money as possible to further vital research and get a combination or repurposed drugs in to trials and patients as quickly as possible.

All the money raised will go to Duchenne UK. The charity was founded by Emily Crossley and Alex Johnson, both mothers of Duchenne boys. They’re unbelievably passionate and effective and almost all (90% plus) of the money they raise and receive funds research and trials. The charity is transforming the outlook for all Duchenne patients.

There really is no time to waste if we’re going to save this and future generations of boys so please give as generously as you possibly can.

THANK YOU!

Recent donors

23.06.17

23.06.17

22.06.17

22.06.17

21.06.17 Well done on this incredible achievement and for the amount of money raised to continue to help in this vital research. Duncan

21.06.17 What an outstanding achievement Ali! So delighted with you and your entire team. Lots of love, Menanteau and Chanel xx

21.06.17

20.06.17 Well done Ali and team. Joy x (Mac's mum)

20.06.17 Ali, well done on completing a challenging endeavour. And very well done on raising an astonishing amount of money. You will have made a huge personal difference to this very noble cause. Best wishes, Ollie

20.06.17 Big Congratulations, Love from us all Chapman-Major Family

20.06.17 Congrats and well done

20.06.17 Well done all of you!

20.06.17 I sincerely wish you al the best with beating this disease.

20.06.17 Chapeau all

20.06.17 Al, you are truly inspirational - well done on another amazing achievement! Lots of love T and H xxx

20.06.17

19.06.17

19.06.17 Well done guys! What a great effort. The Howarth-Corrigans.

19.06.17 Fantastic cause Ali

19.06.17 we wish you success with the ride and sponsorship

19.06.17 Mission complete...many congratulations.

18.06.17 What amazing achievement Ali well done to you and the team. Huge hugs to Felix. xx

18.06.17 Well done on a great ride for an even better cause.

18.06.17 Nice to meet you Mike on the ramp to the plane, outstanding achievement well done!

17.06.17 Well done team! Let's hope we get a cure soon. Those boys deserve it!

£99,820.00

Running total

Target:
£75,000.00
Total raised incl. Gift Aid:
£103,567.50
Total donors:
163
Last donor:
Paul Allen
23.06.17  
Offline fundraising:
£75,050.00
Donate now

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