Charity
A registered charity since 2002, AMEND is a patient support group run by volunteers for the benefit of everyone affected by the multiple endocrine neoplasia disorders and their associated endocrine growths. In addition to providing worldwide email and telephone support, AMEND runs a UK research registry and produces patient information with the help of an expert medical advisory team. Membership of AMEND is free and open to patients and health professionals. AMEND continually strives to look for ways of improving the care and management of MEN patients. Details of our work and free membership registration can be found on AMEND's well-respected website at www.amend.org.uk.
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Sahara 2012!
A Trek to Raise Money for MEN!
On October 26, 2012, I'm going on a 100 kilometer trek in the Sahara desert. My goal is to raise £4448- AKA $7,000- for research on Multiple Endocrine Neoplasia.
My husband John has MEN. This is a really rare disorder that causes cancers of the endocrine system. With a little research and some math I've just discovered that John, who has type 2b, is literally one in a million (anyway I've always thought so).
MEN type 2b wasn't identified as a disease until the 1970s. There are still a lot of questions in terms of treatment and what patients can expect in their future. John's been significantly modified by medical science over the years and now lives minus 4 major bodily organs. He is pretty awesome really.
MEN does not get a lot attention or fundraising mainly because it is so rare. It would mean a lot to me and everyone affected by this disease if you would consider donating any amount for future research.
If I can find 90 people to donate £50 - AKA $78 - I can make my goal. But really we appreciate so much anything you can contribute.
Thank you so much for your support! Picture me as above but with a little less grass and some camels.
-Kathy
Recent donors
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Ayako £20.00 25.10.12 |
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Amy Bullard £13.00 20.10.12 |
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Shari £100.00 29.06.12 |
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The Rummel Family £75.00 13.05.12 Best of luck to you and Uncle Al! Our thoughts will be with you. |
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Neda Chini £16.00 30.04.12 |
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Kay Brennan £13.00 30.04.12 |
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Marsha & Marty McGowan £63.00 12.04.12 |
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Taryn Zier £25.00 15.03.12 Kathy, You rock! I'm so proud of you for doing this. Hopefully we can give more closer to the event. All the best, Taryn |
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S,J,R,K&K McGowan £70.00 06.03.12 Kathy, proud of you and what your doing. Love, Sean, Jen, Ragen, Kieran & Kenedi. |
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Dave and Luesa Jordan £100.00 05.03.12 You have a good heart Kathy, John is blessed to have such a loving wife. |
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Anonymous £15.00 (+ £3.75 giftaid) 02.03.12 |
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Frank and Gloria Procella £20.00 (+ £5.00 giftaid) 02.03.12 |
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The Buis £50.00 01.03.12 Kick it's butt! |
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Michelle Ohlson £20.00 (+ £5.00 giftaid) 01.03.12 |
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James Anderson £30.00 29.02.12 |
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Linda Jackman £63.00 29.02.12 |
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Erin Procella £32.00 15.02.12 Kathy, what you're doing is outstanding! Congrats, have a marvelous time, way to be, love to all ya'll xoxo |
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Steven Butler (and Family) £25.00 (+ £6.25 giftaid) 02.12.11 Because we love you both! |
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Emily £100.00 (+ £25.00 giftaid) 19.11.11 Yay, Kathy! cheers, Emily DF |
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Kate Donaldson-Fletcher & Jonathan Curley £314.00 07.09.11 |
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Patsy and Tom £20.00 (+ £5.00 giftaid) 22.08.11 Great venture and wonderful cause!! |
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Sue Donaldson & Paul Fletcher £154.00 10.08.11 |
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Gretchen and Tony Leonard £100.00 01.08.11 Kathy--Always full of wonderful surprise-- |
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Chris £100.00 (+ £25.00 giftaid) 31.07.11 Watch out for scorpions and desert nomads |
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Anonymous £10.00 31.07.11 |
Running total
- Target:
- £4,448.00
- Total raised incl. Gift Aid:
- £3,742.17
- Total donors:
- 49
- Biggest donor:
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Anonymous
£324.00 - Last donor:
-
Ayako
25.10.12 - Offline fundraising:
- £0.00
