Cystic Fibrosis Trust
The Cystic Fibrosis Trust is the UK's only national charity dealing with all aspects of Cystic Fibrosis. It funds research to treat the symptoms of CF and to find an effective treatment. It also aims to ensure appropriate healthcare for those with Cystic Fibrosis and provides information, advice and support to people with CF and their families across the UK. Cystic Fibrosis is one of the most common, life-threatening diseases in the UK. It affects over 9,000 people and 1 in 25 of us carries the faulty gene that causes Cystic Fibrosis. If two carriers start a family, each child has a 1 in 4 chance of having Cystic Fibrosis. Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick, sticky mucus making it hard to breathe and to digest food. People with Cystic Fibrosis have to endure a rigorous daily treatment regime including physiotherapy to clear the chest, inhaled and injected drugs to thin the mucus and fight infections and dozens of enzyme pills to help digest food. Each week, five babies are born with CF and sadly, each week three young lives are lost. Only half of those with Cystic Fibrosis are likely to live past their late 30s, but a baby born today can expect to live longer. We seek to continually improve standards of care for people with CF; we commission cutting-edge clinical and scientific research; and provide practical and accurate information to people with CF and their families. None of this would be possible without the support of the CF community and the generosity of the public.
Royal Brompton and Harefield Hospitals Charity
Every year thousands of lives are saved by the highly skilled and dedicated teams of professionals at Royal Brompton and Harefield Hospitals, who provide specialist care for patients of all ages. The hospitals attract experts from all over the world, striving to push through the boundaries of research, innovation and treatment of patients with heart and lung disease. Money raised through your sponsorship will directly support our clinical teams, enabling their pioneering work to continue and make a difference to the lives of patients now and in the future.
Live Life Give Life
To save and improve the lives of all those in need or receipt of organ and tissue transplants. The charity exists to improve education and awareness of organ donation and to fund projects that increase the numbers of successful transplants in the UK.
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Kirstie's Big Breath Bike Ride

Kirstie Tancock, Nicholas Withers,

My page:

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Kirstie was born with Cystic Fibrosis,  progressive lung disease. She had been in and out of hospital all her life with frequent chest infections but it was as she reached her late teens that she started to experience a rapid decline in lung function and mobility. Up until then, Kirstie had managed to complete school, study performing arts and arts management, qualify as a fitness pole dancing instructor and run a successful business.

In March of 2011 Kirstie attended Harefield hospital for transplant assessment. Her lung function at the time was just on the cusp of transplant criteria; thankfully the decision was made to put her on the active waiting list for new lungs.

Just six days later, back in Devon, Kirstie was back in the Royal Devon and Exeter hospital due to an alarming decline. She didn't leave the hospital for 4 weeks and on returning home, required carers to perform the simplest of tasks that she was to breathless to do now, such as run a bath, cook food and other general day to day things to get by.

In May Kirstie was struggling even more, and finding the four metres from her bed to the bathroom difficult. She was admitted back into Hospital to start using a non-invasive ventilator called a bi-pap over night and to give her exhausted lungs a rest when required. Kirstie’s CF consultant told her then that if she continued at this rate of decline, she had just six months to live. It turned out six months would be an optimistic prediction. Kirstie was devastated; she was getting married and was terrified it would not mark the start of their lives together, but instead be a goodbye.

Three days before Kirstie’s wedding she was rushed into resus, unable to breathe. She was stabilised but it was apparent that time was running out. Kirstie went from the High Dependency Unit to her wedding with her nurses, physio and doctor all ready to intervene if anything went wrong. Kirstie’s husband-to-be Stuart had a Do Not Resuscitate order in his pocket, knowing if Kirstie did not want to be put on a ventilator if she collapsed, as a transplant would then no longer be an option. Happily, Kirstie made it through the day with the support of her loved ones.

Two weeks after her wedding Kirstie was rushed back in and given a choice; to stay at Exeter and be made comfortable or to be airlifted to Harefield and receive invasive treatment to keep her alive for as long as possible. Kirstie was airlifted to Harefield and placed on a machine called ECMO which removes the blood from the body, extracts the carbon dioxide, oxygenates it, and pumps it back round, essentially doing the job of her heart and lungs. Kirstie spent a week and a half on ECMO until, when she was literally on death’s door, a donor was found.

Since her transplant, Kirstie has fought her way back to health. Her muscles had wasted as she had been so ill, but she’s now back teaching Fitness pole dancing, attending the gym six days a week and six fitness classes a week.

This Event Is a massive celebration Of the gift of life Kirstie recieved. Thanking all the people who helped get her to where she is today by raising money for these Charity's and also to help others in Kirstie's position to recieved the same standard of care and help.

Recent donors


17.10.12 Wel l done kirstie you have been though so much yet come out the other side fighting. It gives me lots of hope for my beautiful daughter Lucy with Cf. Keep up all your great work love Cheryl x


24.09.12 Well done.

24.09.12 Kirstie, you've done well and I hope this donation will go and help others like you

23.09.12 Kirstie - this is from me and the wonderful Woodbury girlie 'cycling cocktail drinkers'. Many homemade Rhubarb vodka mules later the cycling was a bit erratic...! Fantastic to cycle with you and be part of your great achievement.

23.09.12 Well Done xx

20.09.12 Was an honour to watch you all cross the finish line at Harefield hospital, congratulations on completing your journey!!


20.09.12 from ceinwen

16.09.12 What an amazing achievement! Well done!!

14.09.12 read story in the echo well done . love get up and go

14.09.12 Well done team! An inspiration to us all.

13.09.12 Huge WELL DONE KIRSTIE. Your story alone has done so much to raise awareness about CF and Organ Donation as a whole. YOU are such A HUGE INSPIRATION.

12.09.12 Wonderful achievement. Cant belive how far you have come in 1 year. Good luck to the whole team


11.09.12 Congrstulations.Amazing stuff!


10.09.12 Amazing achievement! A huge well done!!!

10.09.12 Fantastic, hopefully I can join you next time!

10.09.12 An amazing achievement. Well done

10.09.12 HUGE congratulations Kirstie! What you've achieved is phenomenal and no mean feat. CF and organ donation still needs a bigger public profile and people like you are a complete inspiration to so many others. best wishes. xx

10.09.12 Well done Kirstie! You're amazing xxxx

10.09.12 Such an amazing and heart-warming story. Best Monday morning story ever!

10.09.12 Well done Kirstie! Really inspirational! :)


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