FOP Action
Working to raise awareness and help find a cure for Fibrodysplasia Ossificans Progressiva (FOP). FOP Action was founded to offer a forum for advice and support to all those affected by FOP, creating a place to find out about helpful aids and equipment and to exchange views and ideas. Since the discovery of the FOP gene in 2006, finding treatments and a cure are a distinct possibility but we need help to support research. FOP Action is a working name of FOP Friends of Oliver a charity registered in England and Wales 1147704.
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Mongol Rally - Steppe Response for FOP

Jonathan Young, Mitchell Davies,

My page:

Will, Jon, Mitch and Tom are driving an old Toyota Yaris 10,000 miles to Mongolia for charity.

We are raising money for a condition close to our hearts, FOP or fibrodysplasia ossificans progressiva.

FOP is a disorder in which fibrous muscle and ligament tissue is gradually replaced by bone, reducing mobility more and more over time. There is currently no cure and because it is such a rare condition it suffers from lack of funding an support. Please click on the link provided to access more information on the FOP Action website, and donate whatever you can to help motivate us in our toughest hour and help those who need it most!

Thanks for reading

Tom, Mitch, Jon and Will

Recent donors

29.08.14 Very well done.

23.08.14 Well done Tom et al!

23.08.14 Well done lads love Rachel hopwoods family xxx Thank you for doing this for FOP

22.08.14 Brilliant news. Well done Jon, and all your friends. So proud and pleased that you have done this fantastic journey.

19.08.14 Just brilliant lads. Thank you so much for your very brave efforts. What an adventure. So proud of you Tom. Lots of love Nan Hylda

18.08.14 Good luck!

18.08.14 Best of luck


17.08.14 Thanks for everything, my daughter jasmine has fop too xx

17.08.14 Well done Will. Sorry we took so long to get round to it. All the best. James and Janet

11.08.14 Tom and boys, have a wild (but safe) time. Proud of you. Lots of love Aunty Dot, Lisa, Steve and Sonny xxxx

08.08.14 Good Luck Will and team

05.08.14 Well done lads!

05.08.14 Don't break down in a desert!

22.07.14 Well done - get yer Yaris in gear chaps.

17.07.14 Good luck to you all!

16.07.14 Good luck may the force be with you!

14.07.14 Wishing you all a very safe adventure and journey. Thank you so much for your very, very brave efforts for FOP Action. With love and thanks Sheryll, Lucy and All families within the FOP Community

07.07.14 Best of luck guys. Hope you raise lots of money for a very good cause.

02.07.14 Have fun guys :)

01.07.14 Hope that this disease can be conquered and that so can the rally.

01.07.14 Enjoy yourselves lads. Get behind 'em

30.06.14 bon voyage, have a safe and enjoyable trip. Will look forward to hearing the stories upon your safe arrival! Jessie x

27.06.14 Good luck and have fun Will & co! Annabel would really like a tiny pressie favourite uncle Will xxxx love meally xxx



Running total

Total raised incl. Gift Aid:
Total donors:
Last donor:
Jane and Rory Campbell
Offline fundraising: