A family-run national children’s charity providing active support for children with drug-resistant epilepsy and their parents/carers. The charity was set up in memory of our daughter Daisy who tragically died at 6 years of age from SUDEP (sudden unexpected death in epilepsy patients). We provide NHS hospitals with ketogenic dietitians - a medically recognised and accepted way of treating drug resistant epilepsy. This diet is not widely available on the NHS due to lack of funding. We also provide grants for night-time breathing monitors to children with drug-resistant epilepsy.
2017 Great North Swim
11 June 2017
Based on teamwork, passion, and closeness to nature, teams of two embark on a seamless journey across the landscape, taking on land and water, as they navigate their way around the course. The Great North SwimRun is an opportunity to ditch the roads and the pool; limber up and embrace an off-road, open-water island-hopping adventure!
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Team Teddy's fundraising page
For the second year running on Sunday 11th June 2017, Charlie Grant, and a group of his family, friends and OGL colleagues, will be tackling the Great North Swim in honour of Charlies little boy, Teddy, who passed away in October 2015, at the tender age of 1. Teddy tragically suffered a complex seizure which resulted in a cardiac arrest. Other than his seizures Teddy had been living an otherwise healthy and very happy life with Charlie, Nikki and big brother Finley.
This is the second year that Charlie and his Swimming team are tackling the great north swim. The team have once again chosen the daisy garland to raise money for. A charity which offers help and support to families whose lives have been touched by drug resistant epilepsy.
The Great North Swim which is held at Lake Windermere was an obvious choice for Charlie because the Lake District is very close to his heart as the family holidayed there when Teddy was just six weeks old. Teddys first boat trip was on Lake Windermere and although he slept through most of the trip when he did wake up he couldnt stop looking around at the water. He also had his first swim during that holiday, although not on the lake! These precious and happy memories of the lake and surrounding area make it the perfect challenge for Charlie.
The Great North Swim is Europes biggest open water swimming event and will have around 10,000 participants.
Charlie and the team of twelve including Matt Grant, Alex Gall, Marco Sivyer, Neil Yarranton, Alex Barnett, Laura Jones, Sara Handley, Dave Handley, Chris Barr, Gavin Davies, Adam Perry and Kate Heighway have signed up for a selection of distances ranging from 1 mile to 10k.The swimmers and distances are referenced below:
Charlie Grant, Adam Perry (This is news to him :) - 10k
Sara Handely, Kate Heighway, Laura Jones - 5k
Matt Grant, Alex Gall, Marco Sivyer, Neil Yarranton, Chris Barr - 2 miles
Gavin Davies, Al Barnett (+family) - 1 mile
Kris Rooney (ACL), Steve Hawkes (Back), Jamie Turvey (graze on knee)
Money raised will go The Daisy Garland where Charlie and Nikki have asked for it to help fund equipment to monitor childrens seizures so that they can lead normal and safe lives.
Please give whatever you can below for this fantastic charity in memory of beautiful Teddy Grant.
Good luck team to the whole team and thank you for all of your continuing support!
Jack Davidson £30.00
20.03.17 Mate I struggle to swim 1 length let alone 130, fair play to you. Good luck to you and the rest of the team 👍
Ella Britton £5.00 (+ £1.25 giftaid)
19.03.17 Good luck Marco and co! In the words of Dory - just keep swimming! Ella and Tim xx
OGL Computer £100.00
06.03.17 Best of luck Charlie from everyone at OGL!
Rooney £15.00 (+ £3.75 giftaid)
02.03.17 Good luck to all involved x
Kim £20.00 (+ £5.00 giftaid)
Shin £20.00 (+ £5.00 giftaid)
02.03.17 Truly inspirational. I doff my hat to you all.