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Noonan Syndrome Association
Noonan Syndrome Association
Running for Mark

Running for Mark

Why we need your help

I'm running the Virtual London Marathon on Sunday 4th October 2020 for the Noonan Syndrome Association and for my brother Mark Legg.

Mark was born to Ian and Lesley Legg in April 1986 and was soon diagnosed with Noonan Syndrome. At this time, at a time this was a rare and very little understood diagnosis. 

Mark showed a fighting spirit due to his ill health whilst providing testing but necessary and important challenges to medical staff. 

He became a role model for young people with Noonan Syndrome as he went through school, college and then picked up voluntary employment. His outgoing, sociable and cheeky nature made him widely known and loved.

In the past few years, my brother's health deteriorated and sadly in April 2019, Mark passed away. Shortly before his death, Mark took part in a "24 Hours in A&E" programme for Channel 4, telling his story and showing his strong desire to live independently.

I make no qualms about it - I am running the Virtual London Marathon 2020 for the Noonan Syndrome Association to honour my brother and to provide an on-going legacy for Mark through the charity.

I want to ensure his passing offers some help and support to other families facing the same position we found ourselves in.

In 1986. little was known about the condition but, in part through the hard work of the charity, we know now a little more about a condition which affects 1 in every 2000 live births in the UK and is one of the most complex Genetic conditions around.

I want to do my utmost to honour a special friend, uncle, son and brother by supporting a charity which is dedicated to families like ours.

Please help me to help them by pledging your support through this page.

I thank you all in advance - if you want to follow my training journey, please follow me on Instagram at matt_legg - and I hope to see as many of you as possible there supporting me on the day.

Matt

9,068.60

raised towards 10,000.00 target

9068.60
10000.00

How you can support us

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Supporters

Oct 29, 2020

Richard

Congrats on a mammoth effort mate! Love Ruch and Bek


Oct 09, 2020

Pat Cliff

10.00
(plus 2.50 giftaid)

Oct 09, 2020

Anonymous


Oct 06, 2020

Jon and Sally

Matt,your brother would have been so proud of you, what a fantastic achievement especially in those conditions Lots of love to you Jenny and the boys xx

200.00
(plus 50.00 giftaid)

Oct 06, 2020

Claire Owen

Well done Matt ??

2.60
(plus 0.65 giftaid)

Oct 05, 2020

Ben Havers

10.00

Oct 05, 2020

The Pretty Family

25.00
(plus 6.25 giftaid)

Oct 05, 2020

Maria Wildman

Well done Matthew - a fantastic achievement in memory of cheeky, loveable Mark. Shame the actual marathon was cancelled & you had to run another course without the cheering crowds, but hey you did your brother proud. Maria, Rod and Elliott (Woodland Way)

20.00
(plus 5.00 giftaid)

Oct 05, 2020

Anonymous

20.00
(plus 5.00 giftaid)

Oct 05, 2020

Emma Rowe

Matt, I?ve been following your journey throughout and you have done amazingly! Congratulations on completing such a huge challenge and raising awareness & much needed funds too. X

20.00
(plus 5.00 giftaid)

90

Total raised so far

9,068.60

Total plus Gift Aid 10,656.00

Direct donations

9,068.60

Raised offline 0.00

Fundraising pages

0.00

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