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Royal College Of Paediatrics And Child Health
Royal College Of Paediatrics And Child Health
Rare Disease Development Fund

Rare Disease Development Fund

Why we need your help

Although rare diseases are infrequent individually, collectively one in 17 people will be affected by a rare disease at some point in their lives.

The objective of the Rare Disease Development Fund is to support research and surveillance projects and to help develop and deliver education and training programmes on rare disease and rare complications - all with the aim of improving health outcomes for children and young people affected by rare diseases.

The fund will facilitate the development of the following:

  • Research awards for paediatricians to carry out translational or basic science research, such as surveillance studies through the BPSU.
  • Grants for BPSU approved studies on rare disease conditions that affect children and that address a question of clinical or public health importance.
  • Bursaries for child health professionals (paediatric specialty trainees, academic trainees, new consultant, allied health professionals) to support attendance at training courses, conferences or events to present data.
  • Development and delivery of educational programmes to support the paediatric workforce to better provide services for children and young people with rare diseases, including face-to-face and online courses in collaboration with BPSU.
  • Development and dissemination of patient resources in collaboration with Rare Disease UK; RCPCH &Us and other stakeholders and patient groups.

We welcome donations from both RCPCH members and non-members, who want to support our work. If you have any questions, please contact

You can also support other areas of the work the RCPCH does: 

Influence health policy for the benefit of children and young people

Engage children and young people (CYP) in all our programmes, ensuring their voices are heard

Educate and train the paediatric workforce

Improve global child health and wellbeing

For information on how we process your data, please click here 

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 This campaign is now closed, and no longer accepting donations.
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