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Duchenne UK
Duchenne UK
DashMAX

DashMAX

Why we need your help

Proposal: to cycle from London to Paris and then on to Monaco, covering 1,500 km’s and climbing over 18,000 m’s, in 9 days, ; raising money for research in to the treatment of Duchenne Muscular Dystrophy (DMD).

Felix

In December 2014 Felix, my now four-year-old son, was diagnosed with Duchenne Muscular Dystrophy, an incurable and fatal muscle wasting disease that kills more children than any other genetic condition. There is accelerating deterioration from birth, resulting in a significant decrease in quality of life by age 7 to 8, wheelchair dependency by early teens, total dependency by late teens and a lingering death in mid-twenties from lung failure and heart disease. 


The reality is not as hopeless as it sounds, thankfully! Real progress is being made in the development of new treatments that have the potential to alter and hopefully even cure Duchenne. And in the shorter term, ongoing research is identifying a combination of drugs approved for the treatment of other diseases that are showing real promise in slowing and perhaps even halting the progress of the disease.

Whether it’s novel or repurposed drugs, their development costs a lot of money, which is why I’m cycling from London to Monaco, covering 1,500 km’s and climbing 18,000 m’s in 9 days, with the aim being to raise as much money as possible to further vital research and get a combination or repurposed drugs in to D-UK funded trials and patients as quickly as possible.

All the money raised will go to Duchenne UK. The charity was founded by Emily Crossley and Alex Johnson, both mothers of Duchenne boys. They’re unbelievably passionate and effective and almost all (90% plus) of the money they raise and receive funds research and trials. The charity really is transforming the future for children with this dreadful disease.

There really is no time to waste if we’re going to save this generation of boys so please give as generously as you possibly can.


World's Strongest Boys

171,837.40

raised towards 250,000.00 target

171837.40
250000.00

Spread the word

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 This campaign is now closed, and no longer accepting donations.

How you can support us

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Supporters

Joseph Barry

Joe's fundraising page

3775.00
Martin Collett

London to Monaco bike ride for Duchenne UK

3600.00
Matt Hinds

Duchenne Dash - to the Max

31615.00
Carlyle Jenkins

Carlyle Jenkins's fundraising page

6175.00
Duchenne DASHMAX

Rob's Duchenne DASH - MAX's fundraising page

0.00
DashMAX

Alasdair Robertson DashMAX 2017

106810.00
Chris Sharpe

Running for Felix

3097.40
Chris Sharpe

Chris Sharpes summer of stupid for Duchene UK

14165.00
Dashmax

Dashmax's fundraising page

200.00

Jul 10, 2017

Ben Hyam

Julian, good luck over those hills! Careful you don't mix up the chamois cream with the sun cream.

100.00
(plus 25.00 giftaid)

Jun 20, 2017

James Martin

Another sterling effort! You actions will continue to help make a difference.

500.00
(plus 125.00 giftaid)

Jun 19, 2017

Ben and Helen Noakes

100.00
(plus 25.00 giftaid)

Jun 16, 2017

Anonymous

Good luck


Jun 14, 2017

Anonymous

100.00
(plus 25.00 giftaid)

Jun 14, 2017

Philippe C

Good Luck!

100.00
(plus 25.00 giftaid)

Jun 13, 2017

s fothergill

Fingers crossed

100.00
(plus 25.00 giftaid)

Jun 13, 2017

Terry P

you are make a difference

100.00
(plus 25.00 giftaid)

Jun 13, 2017

Karolina and Jason Forwood

500.00

Jun 13, 2017

Joe michaels

Good Luck

100.00
(plus 25.00 giftaid)

68

Total raised so far

171,837.40

Total plus Gift Aid 187,110.50

Direct donations

2,400.00

Raised offline 83,650.00

Fundraising pages

85,787.40

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