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Children's Cancer and Leukaemia Group
Children's Cancer and Leukaemia Group
PearlPower

PearlPower

Why we need your help

#PearlPower is a Special Named Fund at CCLG raising funds to support research into All Childhood Cancers with poor outcomes.

One month before her 10th birthday, our fun-loving, kind, gentle, acrobatic, bright and beautiful daughter Pearl, was diagnosed with stage four Ewing's sarcoma, an aggressive form of bone cancer.

Pearl dealt stoically with the cruel realities of her new life. She kept her trademark wit and sense of humour, and took a proactive role in her treatment, naming the tumours 'Vumps' in order to take control of them.

We could not be prouder of her, or more grateful for her determination and zest for life.

Tragically the treatments she endured were simply not good enough to combat the disease and she died in our arms 11 months later. She leaves a gaping hole in our family and community and her loss is felt every moment.

Children in Pearl's position have the odds stacked against them. Childhood cancer is extraordinarily badly funded. Despite the large number of cancer charity adverts featuring smiling bald children, less than 3% worldwide of the money raised for research goes to combat childhood cancer.

As a result very little headway has been made with the treatments available to children. There are some success stories and some childhood cancers now have excellent survival rates but many do not.

Pearl had Ewing's sarcoma, which is a crafty cancer that hides in the bones growing quickly and silently, often maturing and spreading to other parts of the body before being discovered and diagnosed. . It was staggering for us to find that such a tiny slip of an apparently healthy girl had such an enormous melon sized tumour hiding away inside her. We had absolutely no idea. This late diagnosis of course has a devastating impact on survival rates. The treatment available is not designed or even licenced for children but dates back to the 1960s.

In general children need different treatments from adults, they get different types of cancer and their bodies are completely different.

The mechanism of many childhood cancers are not well understood, treatments lag terribly behind adult cancers and outcomes are particularly poor....

We have set up this fund to sponsor much needed research into earlier diagnosis, more successful treatment and prevention of relapse of these tricky to fight cancers. 

Please help us to spare other families from experiencing the tragedy that we live with every day.

From this page you can make a donation to #PearlPower or start your own fundraising page for your event. 

You can also make a donation by text:

Text CCLG 5 PEARL to 70300 to donate £5

More ways to donate, including Direct Debit >

19,203.11

raised so far

19203.11

How you can support us

Make a donation

Select the amount you'd like to give or fundraise towards


Fundraise in support

Create a fundraising page in support of PearlPower and make a real impact

Supporters

Anna Bagnall

Anna Bagnall's Jump For Pearl

1023.80
skydiveforpearl

skydiveforpearl's fundraising page

1070.00
70 at 100mph

70 at 100mph

1125.00
Pearl Power

Oxford to Paris 24hr Dash - Pearl Powered

1381.00
Kieran Conway

Kieran Conway's fundraising page

0.00
Cycle for pearl

Cycle for pearl's fundraising page

80.00
Aimi Imia

Headshave for PearlPower

1425.00
BestieswithPearlPower

BestieswithPearlPower's fundraising page

1280.00
Victoria McVey

Victoria McVey's fundraising page

375.00
Golden Girls

Golden Girls

610.00

Nov 14, 2019

Sussex Mother

50.00

Nov 13, 2019

Anonymous

50.00
(plus 12.50 giftaid)

Nov 06, 2019

Kathryn Meadows

Hi Rachel, this is the last amount of donations received from my Pilates goes Gold event. Kathryn x

37.00
(plus 9.25 giftaid)

Nov 03, 2019

Kelly Foley

?With spooky thanks to the generous trick or treaters visiting The Quadrant

190.00
(plus 47.50 giftaid)

Oct 31, 2019

Andrew Ireland

30.00
(plus 7.50 giftaid)

Oct 15, 2019

Goldfinch Styling - Lucy Thompson

This is the donation from the 'Sussex mother goes Goldfinch' evening from the Goldfinch side. It truly is a the most worthwhile cause and I can't believe that childhood cancer is so poorly funded. Pearl sounds like she brought so much joy to everyone. xx

120.00

Oct 09, 2019

Anonymous

Amazing work you are doing x

20.00

Oct 07, 2019

Anonymous

50.00
(plus 12.50 giftaid)

Oct 04, 2019

Anonymous

Scrolling passed the other dedicated fundraising pages was heartbreaking. My donation is for Pearl as I have just heard her mother speak so eloquently on the radio, and all those I have just scrolled passed.

10.00
(plus 2.50 giftaid)

Oct 04, 2019

Anonymous

Heard Pearl's mum on BBC Sussex - amazing mum!

10.00


Donation summary

Total raised so far

19,203.11

Total plus Gift Aid 22,385.40
Direct donations

8,771.21

Fundraising pages

9,360.90

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