Why we need your help
Super Ru is a Special Named Fund at CCLG raising funds for research into anaplastic large cell lymphoma.
Our third and youngest little man, Ruairi, was diagnosed with anaplastic large cell lymphoma (ALK negative) in July. It was, and still is, our worst nightmare.
ALCL is responsible for just 1% of childhood cancers and the ALK negative version, is a tiny percentage of these. In the UK, they have not seen this disease before in a child of Ruairi’s age. There is no research. There are no case studies in the UK.
We have relied upon national experts to discuss his case, draw on research from similar cancers, look at trials at home and abroad and decide on the best route forward.
He has now started an intensive treatment protocol of chemotherapy drugs and steroids. Our road ahead is scary and uncertain but our gorgeous boy is leading the way through it with his smile as big as ever. He has been so brave, taking everything that is thrown at him and not once complaining.....our Super Ru.
This wonderful village of ours has created the Super Ru charity and has partnered with Children’s Cancer and Leukaemia Group (CCLG), enabling fundraising efforts to be channelled into the most relevant and suitable areas of research for Ru’s cancer.
Our hope for this fundraising is to create a pot of funds to support research into ALCL. There are new drugs that have been trialled and licensed in adults in the UK and are currently being trialled in children in the USA. It would be fantastic to be able to support these development and to improve both outcomes, and the long term effects of children treated for ALCL.
Children’s Cancer and Leukaemia Group is a charity which provides valuable information to families affected by childhood cancers. But, more importantly to us it provides a forum for professionals from around the world to share best practice and funds vital research to both improve outcomes, and lessen the lasting effects of treatment, for children with cancer.
100% of your fundraising or donation will support research into ALCL.
For more ways to donate, including setting up a regular donation by Direct Debit, visit our website >
You can also make a donation by text message:
Text CCLG 5 SUPER RU to 70300 to donate £5.
raised so far
Jan 22, 2020
Dec 22, 2019
Dec 18, 2019
Sep 17, 2019
Aug 29, 2019
Barbara and Trevor
Jun 27, 2019
Neill and Mary Allan
Jun 26, 2019
Angie and Matt
Jun 24, 2019
Chris and Sue French
Jun 12, 2019
RSM UK Dress Down Fridays
May 22, 2019
Emma Esme and Ruby
Total raised so far
Total plus Gift Aid £64,318.14
Raised offline £27,159.81