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Children's Cancer and Leukaemia Group
Children's Cancer and Leukaemia Group
Super Ru

Super Ru

Why we need your help

Children’s Cancer and Leukaemia Group is a charity which provides valuable information to families affected by childhood cancers. But, more importantly to us it provides a forum for professionals from around the world to share best practice and funds vital research to both improve outcomes, and lessen the lasting effects of treatment, for children with cancer.
Our third and youngest little man, Ruairi, was diagnosed with Anaplastic Large Cell Lymphoma (ALK negative) in July. It was, and still is, our worst nightmare. Our first instinct, following diagnosis, was to gather as much information as possible from the professionals and any other forum we could think of. ALCL is responsible for just 1% of childhood cancers and the ALK negative version, is a tiny percentage of these, being more usual in over 55s. In the UK, they have not seen this disease before in a child of Ruairi’s age. There is no research. There are no case studies in the UK. We have relied upon the national experts to discuss his case, draw on research from similar cancers, look at trials at home and abroad and decide on the best route forward. Our road ahead is scary and uncertain but our gorgeous boy is leading the way through it with his smile as big as ever.
Our hope for this fundraising is to create a pot of funds to support research into ALCL. There are new drugs that have been trialled and licensed in adults in the UK and are currently being trialled in children in the USA. It would be fantastic to be able to support these development and to improve both outcomes, and the long term effects of children treated for ALCL.

Super Ru is a Special Named Fund at CCLG raising funds for research into anaplastic large cell lymphoma.

Our third and youngest little man, Ruairi, was diagnosed with anaplastic large cell lymphoma (ALK negative) in July. It was, and still is, our worst nightmare.

ALCL is responsible for just 1% of childhood cancers and the ALK negative version, is a tiny percentage of these. In the UK, they have not seen this disease before in a child of Ruairi’s age. There is no research. There are no case studies in the UK.

We have relied upon national experts to discuss his case, draw on research from similar cancers, look at trials at home and abroad and decide on the best route forward.

He has now started an intensive treatment protocol of chemotherapy drugs and steroids. Our road ahead is scary and uncertain but our gorgeous boy is leading the way through it with his smile as big as ever. He has been so brave, taking everything that is thrown at him and not once complaining.....our Super Ru.

This wonderful village of ours has created the Super Ru charity and has partnered with Children’s Cancer and Leukaemia Group (CCLG), enabling fundraising efforts to be channelled into the most relevant and suitable areas of research for Ru’s cancer.

Our hope for this fundraising is to create a pot of funds to support research into ALCL. There are new drugs that have been trialled and licensed in adults in the UK and are currently being trialled in children in the USA. It would be fantastic to be able to support these development and to improve both outcomes, and the long term effects of children treated for ALCL.

Children’s Cancer and Leukaemia Group is a charity which provides valuable information to families affected by childhood cancers. But, more importantly to us it provides a forum for professionals from around the world to share best practice and funds vital research to both improve outcomes, and lessen the lasting effects of treatment, for children with cancer.

100% of your fundraising or donation will support research into ALCL. 

For more ways to donate, including setting up a regular donation by Direct Debit, visit our website >

You can also make a donation by text message:

Text CCLG 5 SUPER RU to 70300 to donate £5.

Terms & conditions of text donations 

57,942.18

raised so far

57942.18

How you can support us

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Fundraise in support

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Supporters

Ru Angels

Ru Angels

7072.70
Claire Frame

Advent Calendar Raffle

144.00
Super Ru Christmas Cards

Super Ru Christmas Cards

181.50
Super Ru's capes

Super Ru's capes

191.00
cat hackland

Community donations

2042.22
Super Ru on wheels of two

Super Ru on Wheels of Two

3755.00
Course 161B Cycling Challenge

Course 161B Cycling Challenge

5335.00
Super Ru Running Crew

Super Ru Running Crew

6292.00
Super Ru Clothes Sale

Super Ru Clothes Sale

9999.62
Clothes sale raffle

Super Ru Clothes Sale Raffle

2431.00

Sep 17, 2019

Anonymous

80.00

Aug 29, 2019

Barbara and Trevor

Well done Grandma!

5.00
(plus 1.25 giftaid)

Jun 27, 2019

Neill and Mary Allan

10.00
(plus 2.50 giftaid)

Jun 26, 2019

Angie and Matt

66.00

Jun 24, 2019

Chris and Sue French

Missed Matt and Angie's tea party, but wanted to help regardless.

5.00
(plus 1.25 giftaid)

Jun 12, 2019

RSM UK Dress Down Fridays

This donation is from the Milton Keynes office of RSM UK, raised from dress down Friday donations. We are donating this as the niece of one of our colleagues, Kim Griffiths, has been diagnosed with a similar cancer.

226.00

May 22, 2019

Emma Esme and Ruby

Well done family and friends and especially Ru

50.00
(plus 12.50 giftaid)

May 19, 2019

Sarah & Keith

10.00
(plus 2.50 giftaid)

May 13, 2019

Coomesy

Well done guys, great effort.

100.00
(plus 25.00 giftaid)

Apr 21, 2019

Anonymous

Hope the Ride goes well Matt Love from Wendy xx

10.00
(plus 2.50 giftaid)


Donation summary

Total raised so far

57,942.18

Total plus Gift Aid 62,567.64
Direct donations

2,719.64

Fundraising pages

29,547.73

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