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Children's Cancer and Leukaemia Group
Children's Cancer and Leukaemia Group
Daniel's Rainbow Fund

Daniel's Rainbow Fund

Why we need your help

Daniel's Rainbow Fund is a Special Named Fund at CCLG in memory of a special little boy, Daniel Forsythe. The fund is raising money to support research into Wilms' tumour, in particular high-risk and relapsed Wilms' tumours. 

We hope that through this fund, Daniel’s memory can live on.  We hope that research which we can help to fund will make a difference to children in Daniel’s situation in the future.

We hope that one day, through ongoing research, all cancer can be cured.

When we see a rainbow it reminds us of everything we hope for. 

Daniel was diagnosed in May 2017 at the age of four and a half, with Wilms' tumour, a type of childhood kidney cancer. Daniel then faced treatment through the children’s hospital in Belfast.  He had intense chemotherapy, radiotherapy, two major surgeries in England, countless procedures, blood transfusions, scans, tests, hospital visits and stays.

Throughout this, Daniel inspired so many with his boundless energy, twinkling eyes, broad smile and his trademark thumbs up. Daniel simply was a typical little boy.

After his first surgery in July 2017 to remove his right kidney, Daniel’s treatment plan was altered to the ‘high risk’ protocol, which started in August. He coped well with this, dealing with the many side effects of chemo and radiotherapy, but he managed to stay on track. 

He had clear scans in October 2017, which was encouraging, so we plodded on.

It was at his next routine scans in February 2018, and only half way through his treatment plan, that we were given the devastating news that his cancer had relapsed, this time a tumour could be seen in his liver.  As he had been on the high risk protocol to this point, Daniel had already received a lot of the drugs used to treat childhood cancers.  The options already felt limited, but he started a relapse protocol plan, which as usual, he coped remarkably well with.

In April 2018 we returned to Leeds and underwent another major surgery to remove the liver tumour. Daniel bounced back from this, he was amazing!

Disappointingly, the tumour showed little response to the relapse chemo plan Daniel had been on. 

There were no other conventional drugs to try.  But Daniel continued to amaze us as he recovered from surgery and we had a wonderful two month period while we waited to hear about any other possible options which included drug trials using targeted therapy and genome sequencing.

We made some precious memories, living day to day, trips here and there, all the time hoping and praying that the doctors were wrong, that the happy, apparently ‘well’, energetic child in front of us could possibly be cancer free? We were praying for a miracle.

Because Daniel had not had any treatment since before surgery in April, his immune system was stronger and he was able to enjoy outings, some little holidays, integrating with other children, taking part in some school activities. He even joined his primary one class for Sports Day on 12 June, winning a gold and silver medal.

Less than a week after Sports Day, Daniel very quickly became symptomatic. It became clear that his cancer had returned, and was progressing at a rapid rate. He did have emergency radiotherapy, several surgical procedures and a chemo combination including a newer targeted drug. But the aggressive cancer was out of our reach.

Daniel passed away at home on 13 August 2018, aged 5, just a few weeks before his sixth birthday.

We miss Daniel more than words could express, but we hold onto hope. Hope that one day we will be reunited with Daniel in heaven. Hope that this fund may help with research into treatment and the way these cancers can be diagnosed in order to target treatment at an earlier stage.  Hope that one day there will be a cure and no more children will have to die from cancer.

When we see a rainbow it gives us so much hope.

From this page you can make a donation to Daniel's Rainbow Fund, or start a fundraising page to collect sponsorship for your event. 100% of your fundraising or donation will support research into Wilms' tumour. 

For more ways to donate, including setting up a regular donation by Direct Debit, visit our website >

You can also make a donation by text message:

Text CCLG 5 DANIEL to 70300 to donate £5.

Terms & conditions of text donations 

22,433.16

raised so far

22433.16

How you can support us

Make a donation

Select the amount you'd like to give or fundraise towards


Fundraise in support

Create a fundraising page in support of Daniel's Rainbow Fund and make a real impact

Supporters

Joe Bourne

22 mile mourne walk

215.00
Louise Forsythe

Laura Graham is running Belfast marathon

0.00
Laura Graham

Belfast marathon

40.00
The Campbell Girls Snowflake

5k & 10K Roller Blade

4388.70
Twist and Splits Gymnastics Academy

Twist and Splits Gymnastics Academy

170.00
Valley Rangers Youth

Mourne Wall Walk

5484.46

Oct 23, 2019

Anonymous

In memory of Jim Annett.

50.00

Aug 04, 2019

Anonymous

Donation for the mourne wall walk and sponsorship of stone


Jul 09, 2019

Anonymous

300.00

Jul 04, 2019

Milborne St Andrew 1st School

Donated on behalf of Milborne St Andrew 1st School Year 3's Fiver Challenge Fundraiser, Many thanks to all the efforts and hardwork of the "Rainbow Treasures" group, namely, Kacey Stratton, Etta Dennis, Abbie White, Anya Telling and Freya Forsythe.

37.00

Jun 30, 2019

Anonymous

???

10.00
(plus 2.50 giftaid)

Jun 27, 2019

Anonymous

All the very best for Saturday to all involved. What a great thing to do for such a special wee boy.

10.00
(plus 2.50 giftaid)

Jun 27, 2019

Edel Poland

Good luck for Saturday. Best wishes to Louise and Kate and your families. xx

5.00
(plus 1.25 giftaid)

Jun 26, 2019

Anonymous


Jun 26, 2019

Ros

10.00
(plus 2.50 giftaid)

May 19, 2019

Anonymous

20.00
(plus 5.00 giftaid)


Donation summary

Total raised so far

22,433.16

Total plus Gift Aid 23,098.16
Direct donations

1,437.00

Fundraising pages

10,298.16

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