Skip to main content
Norrie Disease Foundation
Norrie Disease Foundation
Research Fundraising Appeal

Research Fundraising Appeal

Why we need your help

Imagine a world without sight.

Now imagine it without sound too.

This is the reality facing children, young people and adults with Norrie disease, a rare genetic condition. There is no cure.

You can help the Norrie Disease Foundation fund research that could completely change the lives of those living with the condition, and stop our blind community going deaf.

Why are we fundraising?

Research into Norrie disease is severely underfunded. The current research looking into treating hearing loss at UCL Great Ormond St Hospital Institute of Child Health finishes in September 2020. If this research is not continued then the knowledge gained so far will be lost and we will not be able to stop our blind community from becoming deaf as well. The progressive hearing loss is one of the most devastating symptoms of Norrie disease and we desperately need to continue this research. But we need your help to do so.

Thanks to a partnership with Sparks and Great Ormond Street Hospital Children's Charity, the Norrie Disease Foundation has the chance to change this if we can raise £62,500 by February 2020 to move forwards with pioneering research into stopping the hearing loss. If this target is reached, Sparks and GOSH will contribute the remaining £187,500 required to ensure the research can take place.

Research into Norrie disease has already made a difference but the only way we can get more answers and results is to get more research done.


Why is this important?

Understanding the causes of the hearing loss will enable researchers to develop therapies to prevent the hearing loss from happening, or to slow down, or stop, the progression. This will change the future for our blind community who have already lost one sense.

How can you help?


56,825.67

raised towards 62,500.00 target

56825.67
62500.00

Spread the word

virginmoneygiving.com/fund/NDF

Url copied

How you can support us

Make a donation

Select the amount you'd like to give or fundraise towards


Fundraise in support

Create a fundraising page in support of Research Fundraising Appeal and make a real impact

Supporters

Samantha Black

Royal Parks Half Marathon

1357.50
Pip Blain

Running a Half Marathon

685.00
Iain Callaghan

iain-callaghan-rpfhm-42009

555.00
Barry Carter

Great South Run 2019

474.00
Mel Freemont

25km Norrie Disease Fundraiser

2310.00
Carla Golledge

Camerons Smile 10k

1001.67
Camerons Smile

Camerons Smile

3971.50
Wendy's 50th

Wendy Horrobin 25km Norrie Disease Fundraiser

7688.84
Rebecca Hunt

London Parks Half Marathon

7185.00
Katy Jenkins

Royal parks half marathon

200.00

Dec 06, 2019

Anonymous

25.00
(plus 6.25 giftaid)

Dec 03, 2019

Anonymous

Proceeds from the Kingsdown music quiz and cake sale. Thanks everyone!!

1059.00

Dec 03, 2019

Anonymous

30.00
(plus 7.50 giftaid)

Dec 03, 2019

Anonymous

10.00
(plus 2.50 giftaid)

Dec 02, 2019

Anonymous


Dec 01, 2019

Anonymous

My page is bodybuildingmotivationofficial Real name Michael Singh @michaelsingh.1 All the best

10.00

Dec 01, 2019

HT

25.00

Nov 30, 2019

Anonymous

10.00
(plus 2.50 giftaid)

Nov 30, 2019

Anonymous

5.00

Nov 30, 2019

Anonymous

5.00
(plus 1.25 giftaid)


90

Donation summary

Total raised so far

56,825.67

Total plus Gift Aid 63,030.07
Direct donations

5,646.00

Fundraising pages

31,045.67

Back to Top

Our website uses cookies. They help us understand how customers use our website so we can give you the best experience possible and also keep our online adverts relevant. By continuing to browse this site or choosing to close this message, you give consent for cookies to be used. Read more about our cookies.

Our site needs cookies
We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.