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Norrie Disease Foundation
Norrie Disease Foundation
Norrie Disease Research Funding

Norrie Disease Research Funding

Why we need your help

Why are we fundraising?

Research into Norrie disease is severely underfunded, and won't happen unless we fund it.

The limited research into Norrie disease hearing loss has already made a difference but the only way we can get more answers and results is to get more research done.

Understanding the basic science of the hearing loss will enable researchers in the future to develop clinical trials of therapies to prevent the hearing loss from happening, or to slow down, or stop, the progression.

This will change the future for our blind community who have already lost one sense.


Why is this important?

Imagine a world without sight. Now imagine it without sound too.


This is the reality facing children, young people and adults with Norrie disease, a rare genetic condition. There is no cure.


You can help the Norrie Disease Foundation fund research that could completely change the lives of those living with the condition, and stop our blind community going deaf.


How can you help?


Spread the word

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How you can support us

Make a donation

Select the amount you'd like to give or fundraise towards


Fundraise in support

Create a fundraising page in support of Norrie Disease Research Funding and make a real impact

Supporters

Samantha Black

Royal Parks Half Marathon

1357.50
Pip Blain

Running a Half Marathon

685.00
Iain Callaghan

iain-callaghan-rpfhm-42009

555.00
Barry Carter

Great South Run 2019

474.00
Mel Freemont

25km Norrie Disease Fundraiser

2310.00
Carla Golledge

Camerons Smile 10k

1181.67
Camerons Smile

Camerons Smile

4116.50
Wendy's 50th

Wendy Horrobin 25km Norrie Disease Fundraiser

7788.84
Rebecca Hunt

London Parks Half Marathon

7185.00
Katy Jenkins

Royal parks half marathon

200.00

Sep 05, 2020

Anonymous

10.00

Jul 24, 2020

Neil

Money raised from plant sale by Auntie Nicola!

40.00

Jul 16, 2020

Anonymous

20.00
(plus 5.00 giftaid)

Jul 09, 2020

Anonymous


Feb 09, 2020

Neil

Proceeds from NorrieFest 2020! Thanks to everyone who helped and contributed!

2909.68

Feb 02, 2020

John Hutchinson

On behalf of Josh Horobin (Wendy Horobin)

25.00
(plus 6.25 giftaid)

Jan 27, 2020

Becca Hunt

Silent auction, Norrie Fest - psb

200.00
(plus 50.00 giftaid)

Jan 27, 2020

Jackie, Micah & Aaliyah

Money raised from selling toys & bikes we weren't using any more.

199.13
(plus 49.78 giftaid)

Jan 26, 2020

Best wishes, Ernie

My donation to cover the bid made at the Norriefest. Thank you for such a super night. Just loved the Silent Disco particularly. Good luck with the fundraising.

75.00
(plus 18.75 giftaid)

Jan 26, 2020

MichelleNJohn

Well done on the mega walk Tash and Wendy!

50.00

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