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Children's Cancer and Leukaemia Group
Children's Cancer and Leukaemia Group
Super Ruby's Rhabdo Raiser

Super Ruby's Rhabdo Raiser

Why we need your help

Super Ruby's Rhabdo Raiser is a Special Named Fund at CCLG, raising funds for research into rhabdomyosarcoma.

Super Ruby's Rhabdo Raiser is a Special Named Fund at CCLG, raising funds for research into rhabdomyosarcoma.
Ruby was diagnosed with stage IV alveolar rhabdomyosarcoma in September 2017. She was 4 years old and had just started school. The only sign there was anything wrong with Ruby was a subtle swelling in her left ankle.
Scans revealed metastases in the muscle in her spine, her pelvic area and lungs. Within weeks she couldn’t walk or stand due to the tumour in her back impeding her spinal cord. She started intensive chemotherapy straight away. The effect was almost immediate - the tumours started to melt away and Ruby started to get sensation back in her legs. She gradually learned to walk again.
Following 9 cycles of chemotherapy and 6 weeks of radiotherapy she was in remission. She continued with maintenance treatment for 6 months and had stable scans in November 2018. In February 2019 she complained of a sore back. scans revealed relapse with disease progression in both legs, her spine and pelvic area. The disease has returned in the areas treated with intense radiotherapy. We are currently waiting to find out what treatment she will receive now. It will be a case of managing the disease and prolonging her life for as long as possible; the prognosis is extremely poor. 
Rhabdomyosarcoma is a very rare muscle cancer which mainly affects children. The alveolar type that Ruby has is very aggressive. New treatments are urgently needed both to cure this horrible disease and also to reduce the side effects or treatment, both acute and long term. We have set up this fund to contribute what we can, along with other CCLG Special Named Funds, to research into new treatments. We don’t want any more families to have to go through what we’re going through.
Ruby is an amazing little girl. Her laugh is infectious, it fills our lives with happiness and light. She is fantastically resilient, optimistic, strong, friendly, noisy, enthusiastic, determined, funny and so much more besides. If we can’t find a treatment to save her, then we want to help find something that saves others and we know she wants the same. She doesn’t want anyone else to have what she has.

Ruby was diagnosed with stage IV alveolar rhabdomyosarcoma in September 2017. She was 4 years old and had just started school. The only sign there was anything wrong with Ruby was a subtle swelling in her left ankle.

Scans revealed metastases in the muscle in her spine, her pelvic area and lungs. Within weeks she couldn’t walk or stand due to the tumour in her back impeding her spinal cord. She started intensive chemotherapy straight away. The effect was almost immediate - the tumours started to melt away and Ruby started to get sensation back in her legs. She gradually learned to walk again.

Following 9 cycles of chemotherapy and 6 weeks of radiotherapy she was in remission. She continued with maintenance treatment for 6 months and had stable scans in November 2018. In February 2019 she complained of a sore back. scans revealed relapse with disease progression in both legs, her spine and pelvic area. The disease has returned in the areas treated with intense radiotherapy. It will be a case of managing the disease and prolonging her life for as long as possible; the prognosis is extremely poor. 

Rhabdomyosarcoma is a very rare muscle cancer which mainly affects children. The alveolar type that Ruby has is very aggressive. New treatments are urgently needed both to cure this horrible disease and also to reduce the side effects or treatment, both acute and long term. We have set up this fund to contribute what we can, along with other CCLG Special Named Funds, to research into new treatments. We don’t want any more families to have to go through what we’re going through.

Ruby is an amazing little girl. Her laugh is infectious, it fills our lives with happiness and light. She is fantastically resilient, optimistic, strong, friendly, noisy, enthusiastic, determined, funny and so much more besides. If we can’t find a treatment to save her, then we want to help find something that saves others and we know she wants the same. She doesn’t want anyone else to have what she has.

From this page you can make a donation to Super Ruby's Rhabdo Raiser, or open your own fundraising page for your event.

For more ways to get involved, visit our website.

You can also text CCLG 5 RUBY to 70300 to donate £3. 

30,503.58

raised so far

30503.58

How you can support us

Make a donation

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Fundraise in support

Create a fundraising page in support of Super Ruby's Rhabdo Raiser and make a real impact

Supporters

Jorunn Bos

Dundee half marathon

563.00
Ruby's Runners

Ruby's Runners

605.00
Catriona Dalton

Scottish Half Marathon

1900.00
Mark Drackford

Edinburgh Marathon 2019

395.00
Super Rubys Rhabdo Raisers

Super Ruby's Rhabdo Raisers

63.00
Donnelly Kids

Walk Across Tay Bridge

900.00
Team Awesome

Team Awesome

465.00
Katy King

Abseiling off Dundee University Tower

677.00
Rita Moreno Dorta

Super Ruby 5K

570.00
Carse Caterers

Carse Caterers

1172.55

Dec 08, 2019

Great Auntie Sonia and Derek

We love your book .

50.00
(plus 12.50 giftaid)

Dec 05, 2019

Radiotherapy Fairies

Last book sold at the ECC, just after you left! Xx

10.00

Dec 05, 2019

Karen King

Hi beautiful. Lovely to hear your treatment has finished here?s to a happy and enjoyable Christmas with no hospital visits x x all our love Agatha, Bacchus, Meredith, Karen and Kevin.

30.00
(plus 7.50 giftaid)

Dec 04, 2019

Isabelle sturgeon

30.00
(plus 7.50 giftaid)

Dec 04, 2019

Danielle

What an amazing girl Ruby is. Can?t wait to read the book. X Danielle feeney

50.00

Dec 03, 2019

Lara

Donation for a copy of the book ?The unicorn with a Ruby Horn?

13.00
(plus 3.25 giftaid)

Dec 03, 2019

Kathryn

For the book, Ruby the unicorn xx

13.00
(plus 3.25 giftaid)

Dec 03, 2019

Siobhan D

The unicorn with the Ruby horn

10.00
(plus 2.50 giftaid)

Dec 03, 2019

Diane & Cara

1 copy of Unicorn book. I will collect . Thanks.

10.00

Dec 03, 2019

Karen OConnir

Please note my copies are to go to Ninewells Pharmacy and they will be collected by Alliance Healthcare driver. Claire Stewart is aware of this. Box/es to be marked For the personal attention of Lynn McWhinnie, Service Centre Manager

300.00


Donation summary

Total raised so far

30,503.58

Total plus Gift Aid 34,415.70
Direct donations

13,018.75

Fundraising pages

14,480.33

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