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Children's Cancer and Leukaemia Group
Children's Cancer and Leukaemia Group
Super Ruby's Rhabdo Raiser

Super Ruby's Rhabdo Raiser

Why we need your help

Super Ruby's Rhabdo Raiser is a Special Named Fund at CCLG, raising funds for research into rhabdomyosarcoma.

Super Ruby's Rhabdo Raiser is a Special Named Fund at CCLG, raising funds for research into rhabdomyosarcoma.
Ruby was diagnosed with stage IV alveolar rhabdomyosarcoma in September 2017. She was 4 years old and had just started school. The only sign there was anything wrong with Ruby was a subtle swelling in her left ankle.
Scans revealed metastases in the muscle in her spine, her pelvic area and lungs. Within weeks she couldn’t walk or stand due to the tumour in her back impeding her spinal cord. She started intensive chemotherapy straight away. The effect was almost immediate - the tumours started to melt away and Ruby started to get sensation back in her legs. She gradually learned to walk again.
Following 9 cycles of chemotherapy and 6 weeks of radiotherapy she was in remission. She continued with maintenance treatment for 6 months and had stable scans in November 2018. In February 2019 she complained of a sore back. scans revealed relapse with disease progression in both legs, her spine and pelvic area. The disease has returned in the areas treated with intense radiotherapy. We are currently waiting to find out what treatment she will receive now. It will be a case of managing the disease and prolonging her life for as long as possible; the prognosis is extremely poor. 
Rhabdomyosarcoma is a very rare muscle cancer which mainly affects children. The alveolar type that Ruby has is very aggressive. New treatments are urgently needed both to cure this horrible disease and also to reduce the side effects or treatment, both acute and long term. We have set up this fund to contribute what we can, along with other CCLG Special Named Funds, to research into new treatments. We don’t want any more families to have to go through what we’re going through.
Ruby is an amazing little girl. Her laugh is infectious, it fills our lives with happiness and light. She is fantastically resilient, optimistic, strong, friendly, noisy, enthusiastic, determined, funny and so much more besides. If we can’t find a treatment to save her, then we want to help find something that saves others and we know she wants the same. She doesn’t want anyone else to have what she has.

Ruby was diagnosed with stage IV alveolar rhabdomyosarcoma in September 2017. She was 4 years old and had just started school. The only sign there was anything wrong with Ruby was a subtle swelling in her left ankle.

Scans revealed metastases in the muscle in her spine, her pelvic area and lungs. Within weeks she couldn’t walk or stand due to the tumour in her back impeding her spinal cord. She started intensive chemotherapy straight away. The effect was almost immediate - the tumours started to melt away and Ruby started to get sensation back in her legs. She gradually learned to walk again.

Following 9 cycles of chemotherapy and 6 weeks of radiotherapy she was in remission. She continued with maintenance treatment for 6 months and had stable scans in November 2018. In February 2019 she complained of a sore back. scans revealed relapse with disease progression in both legs, her spine and pelvic area. The disease has returned in the areas treated with intense radiotherapy. It will be a case of managing the disease and prolonging her life for as long as possible; the prognosis is extremely poor. 

Rhabdomyosarcoma is a very rare muscle cancer which mainly affects children. The alveolar type that Ruby has is very aggressive. New treatments are urgently needed both to cure this horrible disease and also to reduce the side effects or treatment, both acute and long term. We have set up this fund to contribute what we can, along with other CCLG Special Named Funds, to research into new treatments. We don’t want any more families to have to go through what we’re going through.

Ruby is an amazing little girl. Her laugh is infectious, it fills our lives with happiness and light. She is fantastically resilient, optimistic, strong, friendly, noisy, enthusiastic, determined, funny and so much more besides. If we can’t find a treatment to save her, then we want to help find something that saves others and we know she wants the same. She doesn’t want anyone else to have what she has.

From this page you can make a donation to Super Ruby's Rhabdo Raiser, or open your own fundraising page for your event.

For more ways to get involved, visit our website.

You can also text CCLG 5 RUBY to 70300 to donate £3. 

52,152.64

raised so far

52152.64

How you can support us

Make a donation

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Fundraise in support

Create a fundraising page in support of Super Ruby's Rhabdo Raiser and make a real impact

Supporters

Jorunn Bos

Dundee half marathon

563.00
Ruby's Runners

Ruby's Runners

605.00
Catriona Dalton

Scottish Half Marathon

1900.00
Mark Drackford

Edinburgh Marathon 2019

395.00
Super Rubys Rhabdo Raisers

Super Ruby's Rhabdo Raisers

993.00
Donnelly Kids

Walk Across Tay Bridge

900.00
Team Awesome

Team Awesome

465.00
Katy King

Abseiling off Dundee University Tower

677.00
Rita Moreno Dorta

Super Ruby 5K

570.00
Carse Caterers

Carse Caterers

1172.55

Feb 12, 2020

Sara Wakeling

For Ruby. These are the funds raised by Alice?s Arc selling gold ribbon?s for childhood cancer awareness month. This is a little present from Alice in your memory. Both of you are catalysts for change for the future of rhabdomyosarcoma. X

131.00

Feb 11, 2020

Anonymous

5.00

Feb 06, 2020

Claire Hinton

20.00
(plus 5.00 giftaid)

Feb 05, 2020

Anonymous

50.00
(plus 12.50 giftaid)

Feb 04, 2020

Anonymous

obo Alan Stewart

20.00
(plus 5.00 giftaid)

Jan 29, 2020

Stacy McLaren NW CCLG Xmas Pin Badges

Ninewells Pharmacy Department - CCLG Christmas pin badges

113.00
(plus 28.25 giftaid)

Jan 25, 2020

Anonymous

Donation from the Gallaghers

65.00
(plus 16.25 giftaid)

Jan 24, 2020

Rita

Unicorn Ruby

13.00
(plus 3.25 giftaid)

Jan 23, 2020

Siobhan Ramage

Donation from colleagues and their families at Andy's work for Ruby's book, thanks

100.00
(plus 25.00 giftaid)

Jan 22, 2020

Anne Glen

Donation for 2 books

20.00
(plus 5.00 giftaid)


Donation summary

Total raised so far

52,152.64

Total plus Gift Aid 56,585.51
Direct donations

15,192.81

Fundraising pages

15,560.33

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