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Children's Cancer and Leukaemia Group
Children's Cancer and Leukaemia Group
Super Ruby's Rhabdo Raiser

Super Ruby's Rhabdo Raiser

Why we need your help

Super Ruby's Rhabdo Raiser is a Special Named Fund at CCLG, raising funds for research into rhabdomyosarcoma.

Ruby was four years old when in 2017 she was diagnosed with IV alveolar rhabdomyosarcoma.

Ruby’s mum Claire shares her story:

“Ruby was diagnosed with stage IV alveolar rhabdomyosarcoma in September 2017. She was just four years old and had just started school. The only sign there was anything wrong with Ruby was a subtle swelling in her left ankle.

Scans revealed metastases in the muscle in her spine, her pelvic area and lungs. Within weeks she couldn’t walk or stand due to the tumour in her back impeding her spinal cord. She started intensive chemotherapy straight away. The effect was almost immediate - the tumours started to melt away and Ruby started to get sensation back in her legs. She gradually learned to walk again.

Following nine cycles of chemotherapy and six weeks of radiotherapy she was in remission. She continued with maintenance treatment for six months and had stable scans in November 2018. In February 2019 she complained of a sore back and scans revealed relapse with disease progression in both legs, her spine and pelvic area. The disease had returned in the areas treated with intense radiotherapy. Moving forward our only treatment options were to manage the disease and prolong her life for as long as possible.

Ruby faced it all so bravely as she always did. In her final few months we took her on a trip to Lapland where she was so happy to meet Santa and feed his reindeer. She was even involved in co-writing ‘The Unicorn with the Ruby Horn’, a story book that brought her love of unicorns to life.

 Ruby passed away peacefully on 3rd January 2020.

The prognosis for rhabdomyosarcoma is extremely poor as it’s a very rare muscle cancer which mainly affects children. The alveolar type that Ruby had was very aggressive. New treatments are urgently needed both to cure this horrible disease and also to reduce the side effects of treatment, both acute and long term.

We set up this fund to contribute what we can, along with other CCLG Special Named Funds, to research into new treatments. We don’t want any more families to have to go through what we have.

Ruby was an amazing little girl. Her laugh was infectious, it filled our lives with happiness and light. She was always fantastically resilient, optimistic, strong, friendly, noisy, enthusiastic, determined, funny and so much more besides. If we couldn’t find a treatment to save her then we want to help find something that saves others and we know she would want the same.

We also want to encourage people to ‘Be More Ruby’, ensuring her strength, courage and bravery live on by being more like her. This, along with ‘The Unicorn with the Ruby Horn’ and helping others through the funds we raise in her memory, are her lasting legacy.”

Super Ruby's Rhabdo Raiser is a Special Named Fund at CCLG, raising funds for research into rhabdomyosarcoma.
Ruby was diagnosed with stage IV alveolar rhabdomyosarcoma in September 2017. She was 4 years old and had just started school. The only sign there was anything wrong with Ruby was a subtle swelling in her left ankle.
Scans revealed metastases in the muscle in her spine, her pelvic area and lungs. Within weeks she couldn’t walk or stand due to the tumour in her back impeding her spinal cord. She started intensive chemotherapy straight away. The effect was almost immediate - the tumours started to melt away and Ruby started to get sensation back in her legs. She gradually learned to walk again.
Following 9 cycles of chemotherapy and 6 weeks of radiotherapy she was in remission. She continued with maintenance treatment for 6 months and had stable scans in November 2018. In February 2019 she complained of a sore back. scans revealed relapse with disease progression in both legs, her spine and pelvic area. The disease has returned in the areas treated with intense radiotherapy. We are currently waiting to find out what treatment she will receive now. It will be a case of managing the disease and prolonging her life for as long as possible; the prognosis is extremely poor. 
Rhabdomyosarcoma is a very rare muscle cancer which mainly affects children. The alveolar type that Ruby has is very aggressive. New treatments are urgently needed both to cure this horrible disease and also to reduce the side effects or treatment, both acute and long term. We have set up this fund to contribute what we can, along with other CCLG Special Named Funds, to research into new treatments. We don’t want any more families to have to go through what we’re going through.
Ruby is 

From this page you can make a donation to Super Ruby's Rhabdo Raiser, or open your own fundraising page for your event.

For more ways to get involved, visit our website.

You can also text CCLG 5 RUBY to 70300 to donate £3. 

63,359.39

raised so far

63359.39

How you can support us

Make a donation

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Fundraise in support

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Supporters

Jorunn Bos

Dundee half marathon

563.00
Ruby's Runners

Ruby's Runners

605.00
Catriona Dalton

Scottish Half Marathon

1900.00
Mark Drackford

Edinburgh Marathon 2019

395.00
Super Rubys Rhabdo Raisers

Super Ruby's Rhabdo Raisers

1708.00
Donnelly Kids

Walk Across Tay Bridge

900.00
Team Awesome

Team Awesome

465.00
Katy King

Abseiling off Dundee University Tower

677.00
Rita Moreno Dorta

Super Ruby 5K

570.00
Carse Caterers

Carse Caterers

1172.55

Jul 14, 2020

Katie

For facemasks

15.00
(plus 3.75 giftaid)

Jul 13, 2020

Anonymous

Ninewells Facemask sales

25.00
(plus 6.25 giftaid)

Jul 13, 2020

Anonymous

Karen H - Face Mask

3.00
(plus 0.75 giftaid)

Jul 12, 2020

Anonymous

12.00
(plus 3.00 giftaid)

Jul 12, 2020

Sophie Todd

20.00
(plus 5.00 giftaid)

Jul 10, 2020

Anonymous

Belated sponsor money for the Kiltwalk from Ros Lawson

20.00

Jul 09, 2020

Lorraine

For face masks

6.00
(plus 1.50 giftaid)

Jun 11, 2020

Anonymous

275.00

Jun 05, 2020

Pamela Gibb

50.00
(plus 12.50 giftaid)

Jun 05, 2020

Catrina

Book

15.00
(plus 3.75 giftaid)

Total raised so far

63,359.39

Total plus Gift Aid 68,673.50

Direct donations

18,748.56

Raised offline 28,295.50

Fundraising pages

16,315.33

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