Hand in Hand for Oscar
Why we need your help
Meet Oscar, our beautiful 5 year old boy who has T-cell Acute Lymphoblastic Leukaemia. Sadly, Oscar's recent stem cell transplant hasn't cured him, meaning that he urgently needs further treatment that the NHS cannot fund.
We’re pleading to you for help in raising £500,000 to help save our child, which will fund either a second transplant or enrolment onto Car-T therapy in Singapore. We do not have a lot of time. If Oscar does not receive this treatment by November, then our unthinkable will soon become his reality.
Every donation counts, no matter how small.
This is Oscar. Known to his friends as Ozzy bear, or bear. Oscar is 5 years old. He loves exploring the outside world, camping, playing with his friends and of course, like most little boys, he is obsessed with dinosaurs!
He misses his friends dearly and wishes he could go to school each day, where he attended for 3 months before being diagnosed with high risk T-cell Acute Lymphoblastic Leukaemia.
Right now, we have no guarantees that Oscar will see his 6th birthday, unless we act fast.
Since Oscar’s diagnosis in December 2018, he has spent over 9 months in hospital undergoing intense chemotherapy with the aim of receiving a life saving Stem Cell transplant. We were so grateful earlier this year when thousands of people from across the globe signed up to become stem cell donors in the search to find Oscar a donor; we finally got the go ahead with a perfect 10/10 match!
After further chemotherapy, full body radiotherapy and three months of gruelling recovery post-transplant, we were given the devastatingly heart-breaking news that Oscar’s leukaemia has returned. Once again, this is a massive blow to us all as a family, but especially our sweet little boy who had just started to feel like he was getting his childhood life back.
We have been told by specialists that there are NO curative treatment options left for Oscar available on the NHS. At present, children with B-cell Acute Lymphoblastic Leukaemia in Oscar's position are able to undergo CAR-T therapy here in the UK. However, there is no such therapy available for children with T-cell Acute Lymphoblastic Leukaemia. Oscar's care team are recommending Oscar to receive this treatment, which is being offered in Singapore. The consultants in Singapore have provided us with the costs and treatment will cost £500,000. That’s before we’ve even covered flights and accommodation.
This huge amount is the price we have been given to give our boy a chance at life.
Failing this, there is the possibility of a second bone marrow transplant but that cannot be funded by the NHS. Currently, protocol means the NHS will typically only offer a second transplant to patients twelve months after their first transplant. Funding this ourselves would also cost within a region of £500,000.
With the nature of Oscar’s disease, we simply do not have that time to keep his disease at bay. In fact, we only have a few weeks to keep him well enough for either treatment option. After that, he will be referred for palliative care.
Having been told our options are very limited from the beginning of this journey, we have never lost hope, especially with Oscar’s strength and determination throughout. This is why we have made the decision to give our warrior the best shot at a lasting cure. This is the least he deserves after such a torturous battle.
So, we ask you to join Oscar’s army in helping us to save his life. If you are able to help in any way, we would be so grateful. We have agreed to fundraise through the Grace Kelly Childhood Cancer trust who are willing to support us through this next hurdle. Any funds not used to help Oscar with his treatment will be donated to the Grace Kelly Childhood Cancer Trust, registered charity number 1167783 with the aim of funding further research on Oscar’s type of cancer with the aim for kinder and more successful treatments. More can be read about Oscar's story and the charity at www.gkcct.org/oscar.
We will use Oscar’s Facebook (@handinhandforoscar), Instagram (@handinhandforoscar) and twitter pages @handinhandforoz, as well as this Virgin Fundraiser, to update you on his journey.
raised towards £500,000.00 target
Spread the word
Dec 26, 2019
Dec 12, 2019
Nov 19, 2019
RGS The Grange - Oscar Day
Nov 19, 2019
RGS The Grange - Wristbands
Nov 15, 2019
ELLOWES HALL SPORS COLLEGE
Nov 14, 2019
Nov 12, 2019
Additional monies raised from NJK Primary Sch
Nov 11, 2019
Nov 10, 2019
Nov 06, 2019