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Down's Syndrome Association
Down's Syndrome Association
Tell it Right Start it Right

Tell it Right Start it Right

Why we need your help


Tell it Right®, Start it Right Campaign

The DSA has built a body of evidence which proves that a significant number of health professionals continue to provide information about Down’s syndrome in a biased manner. Prospective parents have reported feeling pressurised into a termination when being given a very pessimistic view of the life chances of someone with Down’s syndrome.

As Non-Invasive Prenatal Testing (NIPT) is currently being marketed without the necessary regulation to ensure that each individual choosing to take the test is able to make a decision based upon accurate and balanced information delivered by appropriately trained health professionals, we urgently need your support for our Tell it Right®, Start it Right campaign to address this danger.

We are campaigning for necessary consideration of the ethical implications of NIPT, regulation, and mandatory training for everyone involved in delivering NIPT.

Well trained professionals who work in antenatal, neonatal and postnatal care must provide expectant parents with accurate and balanced information about living with Down’s syndrome today, to include correct information about the life prospects of people with Down’s syndrome, the impact on families, support available in the community and the joys and challenges of having a child with Down’s syndrome.

Easily understood and up to date information about Down’s syndrome must be given without bias or direction.

For more information about Tell it Right®, Start it Right, please visit our website.

Tell it Right® is a registered trade mark of the Down’s Syndrome Association


raised so far


How you can support us

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Create a fundraising page in support of Tell it Right Start it Right and make a real impact


Katharine Coton

Katy Coton 2016 - 40th birthday Adventures!


Simon Croucher's DSA Charity Page

Gin & Paul De

Gin & Paul De's fundraising page

Caroline Harlan-Marks

Wait, Caroline is actually racing??

Josephine Mitchell

Josephine Mitchell's fundraising page

stuart parr

100km Challenge x 2

stuart parr

stuart has walked a long way....


Aug 07, 2018


(plus 2.50 giftaid)

May 18, 2018


(plus 25.00 giftaid)

Oct 13, 2017

Mariam Rosser-Owen

We were given absolutely no information about Down's syndrome when we received our pre-natal diagnosis and there was an immediate expectation that we would terminate our pregnancy. Now we have a beautiful one-year-old daughter who is the light of our life

(plus 12.50 giftaid)

Mar 17, 2017


A really worthwhile project and one very close to our hearts.


Jan 07, 2017



Jan 03, 2017


(plus 2.50 giftaid)

Dec 13, 2016

Phil, from Wrexham

Unfortunately, a very necessary campaign - still.

Dec 10, 2016


Many health professionals have never even met a Downs person. They carry with them prejudice and outdated impressions. Any training is worthwhile.

Dec 01, 2016


(plus 5.00 giftaid)

Nov 28, 2016


The whole system from top to bottom at the NHS is stacked against Down syndrome infants being born. One of the first questions asked to us after the birth of our son by a doctor was "Didn't you have the test?" as though we were almost negligent.

Total raised so far


Total plus Gift Aid 24,929.74

Direct donations


Raised offline 602.69

Fundraising pages


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