Tell it Right Start it Right

Total raised


Total raised (+ Gift Aid)



Tell it Right®, Start it Right Campaign

The DSA has built a body of evidence which proves that a significant number of health professionals continue to provide information about Down’s syndrome in a biased manner. Prospective parents have reported feeling pressurised into a termination when being given a very pessimistic view of the life chances of someone with Down’s syndrome.

As Non-Invasive Prenatal Testing (NIPT) is currently being marketed without the necessary regulation to ensure that each individual choosing to take the test is able to make a decision based upon accurate and balanced information delivered by appropriately trained health professionals, we urgently need your support for our Tell it Right®, Start it Right campaign to address this danger.

We are campaigning for necessary consideration of the ethical implications of NIPT, regulation, and mandatory training for everyone involved in delivering NIPT.

Well trained professionals who work in antenatal, neonatal and postnatal care must provide expectant parents with accurate and balanced information about living with Down’s syndrome today, to include correct information about the life prospects of people with Down’s syndrome, the impact on families, support available in the community and the joys and challenges of having a child with Down’s syndrome.

Easily understood and up to date information about Down’s syndrome must be given without bias or direction.

For more information about Tell it Right®, Start it Right, please visit our website.

Tell it Right® is a registered trade mark of the Down’s Syndrome Association

Select the amount you wish to give

£10.00  Give £10

£20.00  Give £20

£50.00  Give £50

£100.00  Give £100

Katharine Coton

Total raised:
£8605.00 (excl Gift Aid)


Total raised:
£976.00 (excl Gift Aid)

Gin & Paul De

Total raised:
£2286.20 (excl Gift Aid)

Caroline Harlan-Marks

Total raised:
£1766.40 (excl Gift Aid)

Josephine Mitchell

Total raised:
£0.00 (excl Gift Aid)

stuart parr

Total raised:
£2390.00 (excl Gift Aid)

stuart parr

Total raised:
£4166.60 (excl Gift Aid)


Total donations: £1,100.00



£10.00 (+ £2.50 giftaid)



£100.00 (+ £25.00 giftaid)

Mariam Rosser-Owen


£50.00 (+ £12.50 giftaid)

We were given absolutely no information about Down's syndrome when we received our pre-natal diagnosis and there was an immediate expectation that we would terminate our pregnancy. Now we have a beautiful one-year-old daughter who is the light of our life




A really worthwhile project and one very close to our hearts.






£10.00 (+ £2.50 giftaid)

Phil, from Wrexham


Unfortunately, a very necessary campaign - still.



Many health professionals have never even met a Downs person. They carry with them prejudice and outdated impressions. Any training is worthwhile.



£20.00 (+ £5.00 giftaid)



The whole system from top to bottom at the NHS is stacked against Down syndrome infants being born. One of the first questions asked to us after the birth of our son by a doctor was "Didn't you have the test?" as though we were almost negligent.


Get involved