Skip to main content
Down's Syndrome Association
Down's Syndrome Association
Tell it Right Start it Right

Tell it Right Start it Right

Why we need your help

TiR

Tell it Right®, Start it Right Campaign

The DSA has built a body of evidence which proves that a significant number of health professionals continue to provide information about Down’s syndrome in a biased manner. Prospective parents have reported feeling pressurised into a termination when being given a very pessimistic view of the life chances of someone with Down’s syndrome.

As Non-Invasive Prenatal Testing (NIPT) is currently being marketed without the necessary regulation to ensure that each individual choosing to take the test is able to make a decision based upon accurate and balanced information delivered by appropriately trained health professionals, we urgently need your support for our Tell it Right®, Start it Right campaign to address this danger.

We are campaigning for necessary consideration of the ethical implications of NIPT, regulation, and mandatory training for everyone involved in delivering NIPT.

Well trained professionals who work in antenatal, neonatal and postnatal care must provide expectant parents with accurate and balanced information about living with Down’s syndrome today, to include correct information about the life prospects of people with Down’s syndrome, the impact on families, support available in the community and the joys and challenges of having a child with Down’s syndrome.

Easily understood and up to date information about Down’s syndrome must be given without bias or direction.

For more information about Tell it Right®, Start it Right, please visit our website.

Tell it Right® is a registered trade mark of the Down’s Syndrome Association

21,290.20

raised so far

21290.20

How you can support us

Make a donation

Select the amount you'd like to give or fundraise towards


Fundraise in support

Create a fundraising page in support of Tell it Right Start it Right and make a real impact

Supporters

Katharine Coton

Katy Coton 2016 - 40th birthday Adventures!

8605.00
SIMON CROUCHER

Simon Croucher's DSA Charity Page

976.00
Gin & Paul De

Gin & Paul De's fundraising page

2286.20
Caroline Harlan-Marks

Wait, Caroline is actually racing??

1766.40
Josephine Mitchell

Josephine Mitchell's fundraising page

0.00
stuart parr

100km Challenge x 2

2390.00
stuart parr

stuart has walked a long way....

4166.60

Aug 07, 2018

Anonymous

10.00
(plus 2.50 giftaid)

May 18, 2018

Heather

100.00
(plus 25.00 giftaid)

Oct 13, 2017

Mariam Rosser-Owen

We were given absolutely no information about Down's syndrome when we received our pre-natal diagnosis and there was an immediate expectation that we would terminate our pregnancy. Now we have a beautiful one-year-old daughter who is the light of our life

50.00
(plus 12.50 giftaid)

Mar 17, 2017

NG

A really worthwhile project and one very close to our hearts.

250.00

Jan 07, 2017

Anonymous

10.00

Jan 03, 2017

Anonymous

10.00
(plus 2.50 giftaid)

Dec 13, 2016

Phil, from Wrexham

Unfortunately, a very necessary campaign - still.


Dec 10, 2016

frances

Many health professionals have never even met a Downs person. They carry with them prejudice and outdated impressions. Any training is worthwhile.


Dec 01, 2016

Caroline

20.00
(plus 5.00 giftaid)

Nov 28, 2016

Anonymous

The whole system from top to bottom at the NHS is stacked against Down syndrome infants being born. One of the first questions asked to us after the birth of our son by a doctor was "Didn't you have the test?" as though we were almost negligent.


Total raised so far

21,290.20

Total plus Gift Aid 24,929.74

Direct donations

1,100.00

Raised offline 602.69

Fundraising pages

19,587.51

Back to Top

Our website uses cookies. They help us understand how customers use our website so we can give you the best experience possible and also keep our online adverts relevant. By continuing to browse this site or choosing to close this message, you give consent for cookies to be used. Read more about our cookies.

Our site needs cookies
We need cookies to help you sign in, create a fundraising page and donate. If you want to fundraise or donate on our site, you will need to turn on cookies How to turn on cookies.