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Duchenne UK
Duchenne UK
Dash MAX

Dash MAX

Why we need your help

Proposal: to cycle from London to Paris and then on to Monaco, covering 1,500 km’s and climbing over 20,000 m’s, in 9 days, raising money to find a cure for Duchenne Muscular Dystrophy (DMD).


In December 2014 Felix, my now six-year-old son, was diagnosed with Duchenne Muscular Dystrophy, an incurable and fatal muscle wasting disease that kills more children than any other genetic condition. There is accelerating deterioration from birth, resulting in a significant decrease in quality of life by age 7 to 8, wheelchair dependency by early teens, total dependency by late teens and a lingering death in mid-twenties from lung failure and heart disease.
 

We’ve made huge progress since last year’s ride. The money we raised has helped fund a human trial of the cancer drug, Tamoxifen, which has shown real promise as a treatment for DMD. It’s also been used to help fund initiatives that will change the approval and reimbursement processes, which play such an important role in getting drugs into clinic.  But there is still a huge amount to be done: we need a combination of repurposed drugs like Tamoxifen if we’re going to alter the trajectory of the disease and there’s still no cure. To tackle both of these issues we need a lot more money, which is why we’re again cycling from London to Monaco, journeying 1,500 km’s and climbing a ridiculous 20,000 m’s in 9 days.

All the money raised will go to Duchenne UK. The charity was founded by Emily Crossley and Alex Johnson, both mothers of Duchenne boys. They’re unbelievably passionate and effective and almost all (90% plus) of the money they raise and receive funds research and trials. The charity really is transforming the future for children with this dreadful disease.

There is absolutely no time to waste if we’re going to save this generation of boys so please give as generously as you possibly can.

Thank you.


World's Strongest Boys

168,697.17

raised so far

168697.17
 This campaign is now closed, and no longer accepting donations.

How you can support us

Make a donation

Select the amount you'd like to give or fundraise towards

Supporters

Mike Axon

Mike Axon's DuchenneDASH MAX Fundraising Page

30000.00
HFM Wheelers

HFM Wheelers

15333.00
Martin Collett

Cycling 1,500 km from London to Monaco

1380.00
Carlyle Jenkins

Duchenne Dash Max

4649.30
Spokes of Justice

Spokes of Justice

7045.00
Andy Macdonald

Duchenne DashMAX

7470.00
Oliver May

300,000 dying children, 1 Cure, 10 Years

9220.00
William Mitchell

Dash Max 2018

1310.00
Mission Performance

Duchenne Dash MAX

0.00

Aug 01, 2018

Duncan Wheeler

50.00
(plus 12.50 giftaid)

Jul 30, 2018

Catriona Horey

A small donation in support of your endeavour.

20.00

Jun 26, 2018

Anonymous

20.00

Jun 26, 2018

TU and HU

Well done on a fantastic ride, sending you all lots of love, T and H xxx


Jun 25, 2018

Anonymous

10.00
(plus 2.50 giftaid)

Jun 18, 2018

Anonymous

20.00
(plus 5.00 giftaid)

Jun 16, 2018

Liz

Bon journey x

10.00
(plus 2.50 giftaid)

Jun 14, 2018

Sarah and Steve Crossley

Such an amazing cause. Huge respect to all you amazing people. Good luck to all the Dash Max's

100.00
(plus 25.00 giftaid)

Jun 13, 2018

Anonymous

Go team Dash Max - good luck! Keep up the amazing effort!

1000.00

Jun 12, 2018

Anna and Laura

Go Yellow Group! Best of luck with the Alps - hope Emily is keeping you all on time! We'll be there next year... (maybe)! Anna and Laura (the 'not' PR girls) x

50.00
(plus 12.50 giftaid)


Donation summary

Total raised so far

168,697.17

Total plus Gift Aid 179,411.67
Direct donations

2,060.00

Fundraising pages

56,502.87

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