DashMAX - London to Biarritz

http://uk.virginmoneygiving.com/fund/dashmax19

Total raised

£109,736.90

Total raised (+ Gift Aid)

£113,031.90

Proposal: to cycle from London to Biarritz raising money to find a cure for Duchenne Muscular Dystrophy (DMD).

Felix
In December 2014 Felix was diagnosed with Duchenne Muscular Dystrophy, an incurable and fatal muscle wasting disease that kills more children than any other genetic condition. There is accelerating deterioration from birth, resulting in a significant decrease in quality of life by age 7 to 8, wheelchair dependency by early teens, total dependency by late teens and a lingering death in mid-twenties from lung failure and heart disease.
 

We’ve made huge progress since last year’s ride from London to Monaco. The money we raised has helped fund a human trial of the cancer drug, Tamoxifen, which has shown real promise as a treatment for DMD. It’s also been used to help fund initiatives that will change the approval and reimbursement processes, which play such an important role in getting drugs into clinic.  But there is still a huge amount to be done: we need a combination of repurposed drugs like Tamoxifen if we’re going to alter the trajectory of the disease and there’s still no cure. To tackle both of these issues we need a lot more money, which is why we’re again cycling, this time from London to Biarritz.

All the money raised will go to Duchenne UK. The charity was founded by Emily Crossley and Alex Johnson, both mothers of Duchenne boys. They’re unbelievably passionate and effective and almost all (90% plus) of the money they raise and receive funds research and trials. The charity really is transforming the future for children with this dreadful disease.

There is absolutely no time to waste if we’re going to save this generation of boys so please give as generously as you possibly can.

Thank you.


World's Strongest Boys

Select the amount you wish to give

£20.00  FUNDS HALF AN HOUR OF RESEARCH INTO DUCHENNE MUSCU

£40.00  FUNDS 1 HOUR OF RESEARCH INTO DUCHENNE MUSCULAR DY

£120.00  FUNDS A CLINICAL TRIAL NURSE FOR 1 DAY

£500.00  FUNDS EDUCATIONAL SUPPORT FOR 1 CHILD

£10000.00  FUNDS A CHILD ON A TRIAL FOR A YEAR

Mike Axon

Total raised:
£0.00 (excl Gift Aid)

Mike Axon

Total raised:
£20050.00 (excl Gift Aid)

Martin Collett

Total raised:
£1395.00 (excl Gift Aid)

Jo and Andy Coombes

Total raised:
£2366.00 (excl Gift Aid)

Carlyle Jenkins

Total raised:
£1600.00 (excl Gift Aid)

Andy Macdonald

Total raised:
£1380.00 (excl Gift Aid)

Olivia Matthews

Total raised:
£40924.93 (excl Gift Aid)

Christiaan Mcleod

Total raised:
£10000.00 (excl Gift Aid)

Alasdair Robertson

Total raised:
£26915.97 (excl Gift Aid)

Michael Rudd

Total raised:
£1760.00 (excl Gift Aid)

  

Total donations: £3,345.00

Peter Denton

17.06.19

£2000.00 (+ £500.00 giftaid)

Congratulations to all of the riders of the Duchenne Dash Max 2019. You made it despite the rain and wind!

Tony and Heidi

17.06.19

£100.00

Well done everyone on a fantastic effort!

The Zeals

15.06.19

£100.00 (+ £25.00 giftaid)

With much love from all the Zeals xx

Katharine

14.06.19

£20.00 (+ £5.00 giftaid)

Susie Johnston

13.06.19

£500.00 (+ £125.00 giftaid)

For Felix and every person connected to finding the cure for Duchenne. Worlds Strongest Boys. xxx

Julie Fissinger

04.06.19

£75.00

Have a great ride for a wonderful cause.

Tasja

03.06.19

£500.00 (+ £125.00 giftaid)

Keep Fighting!

Steve

03.06.19

£50.00 (+ £12.50 giftaid)

Allez, allez Ali!

  

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