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November 17, 2022

Only 421 days to go!

Further information

PAWS-GIST is a specialist initiative of the charity GIST Support UK. GIST (Gastro Intestinal Stromal Tumour) is a rare form of cancer. PAWS-GIST (Paediatric Adolescent Wild-type and Syndromic GIST) is a rare subset of GIST cancer, often found in children and young adults. There is no cure for this cancer and treatment options are limited. PAWS-GIST aims to fund research and improve the outlook for patients with this very rare cancer. Since the PAWS-GIST initiative was created in 2010 we have formed the PAWS-GIST clinic; an alliance with specialists at Addenbrooke’s hospital, Cambridge. The clinic enables individual patient consultations with a multidisciplinary team of specialists and provides tailored treatment plans. The clinic also serves as a research project by providing a wealth of information on this rare disease. To-date we have held 14 clinics and seen over 80 patients. In addition to the PAWS-GIST clinic, our initiative also funds several research projects, aiming to further our understanding of this disease and develop new treatment options. Our clinic team actively seek treatment options that may be effective for this rare subgroup of GIST patients and are working to open opportunities for PAWS-GIST specific clinical trials. The charity GIST Support UK and the PAWS-GIST initiative are run entirely by volunteers and receive no government funding. If you would like further information, or would like to support our work please contact For information please visit our website:

Who can take part

You can set up a fundraising page for PAWS-GIST by linking to this page. If you have any questions or would like to receive a fundraising pack please contact us at

Contact details

Stella Turner

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