Who we are
The Encephalitis Society is the only charity of any size anywhere in the world providing direct support and information to people affected by encephalitis (brain inflammation), raising awareness, and furthering our understanding of the condition through research. Since 1994, we have grown from a small, mutual support group into an international community of over 12,000 members affected by encephalitis and 2,000 professional members with scientific and medical expertise. Our small but mighty team of 14 staff is based in Malton, North Yorkshire but we have a global reach.
Everything we do is about increasing global awareness of encephalitis, saving lives, and building better futures. Our inspiring CEO Ava Easton is an encephalitis expert, and our support team combines 60 years’ worth of experience supporting people affected by encephalitis. We have a committed, skilled, and diverse trustee board and a 19-member strong Scientific Panel representing world-leading researchers and medical professionals.
Worldwide, a person is diagnosed with encephalitis (brain inflammation) every minute. Caused by infection (usually viral) or by autoimmune diseases, encephalitis strikes children and adults alike with no respect for gender or ethnicity. It is an acutely serious condition with high mortality rates - depending on the cause, even with treatment up to four in 10 people affected will die. While no two people are affected in the same way, many who survive the initial medical emergency are left with an acquired brain injury which will affect their memory, thinking and personality for the rest of their lives. Survivors are also more likely to suffer with poor mental health than the wider population. Despite being more prevalent in many countries than Motor Neurone Disease, multiple sclerosis, cerebral palsy and bacterial meningitis, eight out of 10 people have never heard of encephalitis.
Our Vision is a world aware of encephalitis, its consequences and the support available.
Our mission is to increase global awareness of encephalitis, saving lives and building better futures.
Our aim is to improve the quality of life of all people affected directly and indirectly by encephalitis, by:
- Providing support and information to individuals, their friends and family who are living with encephalitis
- Raising awareness of encephalitis
- Promoting and collaborating on research