Rett UK

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Charity details

Registered address
Victory House,Chobham Street
Luton,Bedfordshire
LU1 3BS

Phone
01582 798 910

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Charity number
1137820

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A diagnosis of Rett syndrome can be devastating, your life is changed overnight.  All that you had hoped and dreamed for your child can seem taken away from you in an instant. 

Rett syndrome is caused by a random gene mutation which happens at the moment of conception, like a short circuit in the brain.   Symptoms often don't become apparent until 9 - 18 months, when babies may stop meeting milestones and lose some of the skills they already have.

Rett UK support families like Hannah's through a national helpline, including telephone and email support, co-ordinates Rett specialist clinics in conjunction with the NHS, organise support groups and have a dedicated parental contact network.

Please help us support families who don't yet know they will be affected by this cruel and as yet, incurable condition and those families like Hannah's who are living with Rett syndrome everyday.



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