Guillain-Barre and Associated Inflammatory Neuropathies

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Charity details

Registered address
Glennys Sanders House Pride Parkway,Enterprise Park
Sleaford,Lincolnshire
NG34 8GL

Phone
01529 469910

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Charity number
1154843

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Guillain-Barré & Associated Inflammatory Neuropathies (GAIN)

 Every year over 1600 people in the UK and Ireland suffer from one of the variants of Guillain-Barré syndrome. The illness can be devastating for patients and their families and friends, and sadly around 15% suffer lasting disabilities and 10% will die as a result of having GBS.

 The Guillain-Barré & Inflammatory Neuropathies Charity exists to support those affected. The charitable objectives include

  • The provision of care, information, non-medical advice and other assistance to sufferers and their families
  • Promoting research into the causes, prevention and treatment of the illness
  • Advancing the education of the public and of the health and social care professions concerning the illnesses, their causes, prevention and treatment.

 About GBS & CIDP

Guillain-Barré Syndrome (GBS) is an inflammatory disorder in which the body’s immune system attacks the peripheral nerves. Severe weakness and numbness in the legs and arms characterise GBS. Loss of feeling and movement (paralysis) may occur in the legs, arms, upper body and face. Because the cause of GBS is unknown, there is no way to prevent the disease from occurring. Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is a disorder related to GBS that follows a much longer course. Though rarely fatal, recovery is not spontaneous like GBS and many patients seek an effective treatment that often proves elusive.

 How you can help us

As long as people continue to be taken ill by GBS and CIDP, the Charity’s work will never be complete. We can only continue to provide our service with the continuing help of our generous supporters. There are several way in which they can help us and make the extra difference. Some people like to hold a fund-raising event which also has the advantage of spreading awareness. Others prefer to make a financial donation. Additionally many wish to become members of the Charity so that the mutual support between them, the Charity and other members may continue.

 What the Charity can do for you

Give awareness presentations to hospitals and universities

Provision of information to medical professionals, patients and their families

Provision of information via our website

Provision of grants to help sufferers 

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