Short Bowel Survivor and Friends
Who we are
Short Bowel Survivor & Friends are a children's Charity set up by parents/carers of children with the potentially life threatening condition Short Bowel Syndrome (SBS)
Our Mission is to:
- provide support and advice to families with SBS through our website at www.shortbowelsurvivor.co.uk where up-to-date reliable information is available for everyone to access.
- raise awareness of Short Bowel Syndrome throughout the UK and beyond making it an uncommon, but recognised condition.
- provide some financial support in the form of small grants where needed, for small items of equipment, materials or clothing and where necessary, help towards travel expenses, especially where parents live some distance from the hospital.
Children suffering with SBS need surgery immediately or soon after birth if they are to survive. They are fed intravenously through a catheter or central line which leaves them vunerable to serious line infections. These children will inevitably return to hospital for further surgery and treatment throughout their young lives.