Pseudo obstruction Research Trust

Find out more

Charity details

Registered address
Steeple Lodge Church Lane,Doddinghurst
CM15 0NJ


Email us

Visit our website

Charity number


The Pseudo Obstruction Research Trust (PORT) was formed by Sue Stewart and Sonia Frost in February 2006 to fund research into Chronic Intestinal Pseudo Obstruction. It was formed in loving memory of Emily Jasmine Frost who lost her life due to complications arising from Chronic Intestinal Pseudo Obstruction; Emily was two years old. Sue and Sonia wanted children and adults to have the chance of a better future and quality of life. They decided to fund vital research into this debilitating and often fatal illness, thus founding PORT to achieve this aim. To date PORT are very proud to have donated over £750,00 towards research, with more project in the pipeline. With your help PORT can continue to fund research, and hopefully develop treatments and hopefully a cure for Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and a common complication of these conditions, Intestinal Failure.

However, PORT isn't only about funding research. We support people with the condition as well as their families, through our Facebook Support Group and through phone calls and emails. We also held a Patient Information Day in October 2015 which was very well received; we hope to organise more in the future. These conditions, being rare, are very isolating. PORT provides a vital lifeline for these people and their families, offering advice and support, as well as connecting families with these conditions which helps them feel less alone. 

Please help PORT continue its vital work in funding research as well as supporting patients of these debilitating, often life threatening conditions. 

Emily Jasmine Frost

Beth Louise

Eilidh Holly

Phoebe Rocco

Bob Alby

Poppy Lucy

Isla Ella

Support us

If you'd like to support Pseudo obstruction Research Trust just click the links below:

Start fundraising Make a donation Make a monthly donation Donate your stuff