The National Society For Phenylketonuria (United Kingdom) Limited

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Charity details

Registered address
Richard House,Winckley Square

030 3040 1090

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The NSPKU exists to help and support people with PKU, their families and carers. It works closely with medical professionals in the UK through its Medical Advisory Panel (MAP). It receives no government funding and is dependent on the generosity of its members and the public to fund practical support, raising awareness and research into the condition. The Society publishes a wide range of booklets and leaflets (including food lists) for parents, people with PKU and medical professionals. It organises family conferences, study days and also sponsors medical research into PKU. It is run by the NSPKU Council of Management who are all unpaid volunteers with PKU in their family.

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